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Posted Apr 11 2009 12:46am

You know you have a child with special needs when you practically do a back flip in the specialist's office because your child ONLY has a broken toe... that is when the alternative could possibly be leukemia.  Yesterday we got in to see the bone and joint doc and she did even more x-rays.  Initially I think she missed the fracture too but what she saw on the film was new bone growth and they she magnified the image and looked closer.  And there it was.  A fine fracture of the metatarsal... in the head of the long bone on the big toe.  She suspects that he could have gotten this sort of fracture from stubbing his toe really hard... but with Sam who knows.  Since it is already healing and in place there was not much to do... so no cast.  We will let him nurse it for a few more weeks but if he is not at least attempting to walk again in 2 weeks we will take him back for a follow up.  So need less to say we are thrilled.

FYI for those of you who think I might be insane....  leukemia is a very common risk for kids with Down syndrome... something like 60%.  Often times, especially when our kids are non verbal, the only way they have to tell us that something is wrong is by acting out or when they abruptly stop doing and activity that they usually do (such as walking, weight bearing, smiling, eating etc). but otherwise appear perfectly fine.  In Sam's case he would not put weight on his left foot for nearly 2 weeks now and sadly not weight bearing is a big red flag.  

Thank you thank you thank you for all our Down syndrome friends who asked about Sam's bloodwork (believe me I KNEW exactly what you were thinking).  We did not do a CBC at this time but like I said... he will (regardless of how his foot is) have a complete blood work up during his surgery in a few weeks... more on that later.  In the mean time we are doing the happy dance... over Sam's broken toe.
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