Here he is after he was asleep, during the echo. They let me hold him while they put the medicine in the I.V. for sedation. It is quite scary to watch and feel your child go from wide awake and moving....to out cold and limp, in seconds flat!
I hate that Gavin has to go through more than the typical child.....but he does it with such grace! He makes me feel so proud of him! He is a true inspiration to me.....I love him so much!
We ended up getting great results too! Gavin's heart function is good despite the significant valve leak. There are no longer any holes detected in the heart. His pacemaker is only having to fire about 8% of the time, and there is a 6-24 month battery life left on it. We have to go back in during the summer for further testing, and we know that he will need surgery to replace the battery and the leads on the heart someday....but otherwise his heart is tolerating his body's needs quite well! What a blessing!
Gavin's life may have started out very rough, but when I think back to "then"....and when I think about "now", I am amazed by the grace God has supplied our family! Not only did we get to bring our boy home, we have even seen him flourish in our home! Don't get me wrong, life isn't very easy on him....and days aren't exactly easy caring for him either! He is a 35 pound six year old, who can't even sit up on his own.....which makes dressing him and carrying him around quite strenuous. He can't eat by mouth, and is only fed by a gastric tube. Plus, he takes many meds and nebs per day. We have many doctor's visits for him, and we worry about him getting sick due to his already compromised health. He can't tell us how he's feeling or what he wants....his mind and body are functioning like that of a 4-9 month old. BUT.....he is alive, he is home with us, he is such a happy boy, and he is a wonderful blessing from the Lord!
"Then"....and....."Now." Wow! What a difference!
"Indeed we count them blessed who endure. You have heard of the perseverance of Job and seen the end intended by the Lord — that the Lord is very compassionate and merciful." James 5:11