Aiden has been on a special low-fat diet since his chylothorax episode back in May. He has been getting a special formula, known as Portagen. Portagen is a milk-protein based powder with medium-chain tryglycerides (MCT) for children and adults. It is used for defects in the intraluminal hydrolysis of fat (decreased pancreatic lipase, decreased bile salts); defective mucosal fat absorption ( decreased mucosal permeability, decreased absorptive surface); and/ or defective lymphatic transport of fat (ie, intestinal lymphatic obstruction). The latter being what chylothorax is. Not only is it expensive, it smells like wet dirty rocks.
Well, the last time I talked to Dr. Cardiologist, she said that she was going to start weaning Aiden off of the Portagen. We have already been giving Aiden a little bit of Pediasure to take with his medications, and he seemed to really like the flavour. Anything has to taste better than Portagen. And it smells really good. Of course it smells like vanilla milkshakes.
Tuesday, Dr. Cardiologist prescribed Aiden to eat Pediasure full time.
Translation: Aiden is no longer on a fat restricted diet. Granted, he can't go overboard on fat intake. But this is a start. Hopefully, he'll start gaining the weight he hasn't been able to in the last year.
No, we're not going to stop blogging!
Aiden has been on a special low-fat diet since his chylothorax episode back in May. He has been getting a special formula, known as Portagen. Portagen is a milk-protein based powder with medium-chain tryglycerides (MCT) for children and adults. It is used for defects in the intraluminal hydrolysis of fat (decreased pancreatic lipase, decreased bile salts); defective mucosal fat absorption ( decreased mucosal permeability, decreased absorptive surface); and/ or defective lymphatic transport of fat (ie, intestinal lymphatic obstruction). The latter being what chylothorax is. Not only is it expensive, it smells like wet dirty rocks.
Well, the last time I talked to Dr. Cardiologist, she said that she was going to start weaning Aiden off of the Portagen. We have already been giving Aiden a little bit of Pediasure to take with his medications, and he seemed to really like the flavour. Anything has to taste better than Portagen. And it smells really good. Of course it smells like vanilla milkshakes.
Tuesday, Dr. Cardiologist prescribed Aiden to eat Pediasure full time.
Translation: Aiden is no longer on a fat restricted diet. Granted, he can't go overboard on fat intake. But this is a start. Hopefully, he'll start gaining the weight he hasn't been able to in the last year.