We go to see the neurologist today for the first time. I am nervous as always going up to Primary's, which I am sure that anyone who has ever spent a significant amount of time in a children's hospital can understand. It's a Love/Hate relationship.
We have decided to hold off on the echo for now, as they knew the valve was leaking from the last one, and the doctor seems to think that it sounds no different than before, and yesterday's chest xray shows that the extra fluid he was holding is now almost gone. This makes me so happy. I have been a wreck thinking about another possible heart surgery, so as you can imagine I am ecstatic. Also since we started the new meds and increased the prevacid he is a new kid. I have a video that I took last night of him spinning all over the living room like Tarzan, but I don't have time to download it right now.
So any positive vibes coming our way today would be greatly appreciated. I am sure things are good, but just the word neurologist makes my stomach flip flop. Rhett does crazy things when he is in that hospital, he gets a bad case of the jitters, and is constantly glaring at anyone that walks by him in scrubs. So I am praying that he is CALM.
Oh, and the quilt block on the below post, no I did not make that. There is a group of people that make them, you have to be put on a waiting list, and they make them then put them into a quilt that travels around the country. We were on the list in July, and just got his block done. So it isn't a huge list or anything. If anyone who has had kids with CHD and is interested in the link, let me know and I will dig up the link.