I think we are finally going to Holland! This last few weeks, Aiden has had several REALLY amazing dr appointments. It started with Aiden's 1 year exam at the pediatrician's office. Aiden amazed Dr. Setter with his vocalization skills. He's up to three words that are recognizable and he vocalizes a lot of sounds. Not to mention all the laughing the kid does. Aiden loves to laugh. Aiden is also pushing through with his legs, trying to stand up. He's not crawling yet, but he wants to stand up. And since Aiden is still putting weight on at a consistant pace, we no longer have to go in once a month for a weight check. He's on a "normal" routine now. Then last week we went for our monthly digoxin level check, chest xrays, and echo. This is a two day excursion. We have to go get the dig check and the xrays one day before the echo. Thankfully, we don't have to go all the way to the main hospital; we can go to the smaller (and closer)hospital for those. Well, at the next day's cardiologist visit, I was watching the echo being done. The echo tech was looking at a valve. Now, I have seen all of Aiden's echos. And in all of them, I have seen the leakage in the mitrial valve. Well, on this last echo, we were looking at a valve and I had to ask which valve it was. When Kim said the mitrial valve, I had to take another look. There was no leakage. When Tracy came in to get Aiden's vitals, she put on the pulse ox monitor. Even with a full blown cold, Aiden's sats were 98-99. There was a really long wait between seeing Tracy and Dr. Lundt. Really long. Long enough that I just knew that Aiden was going to get admitted. Dr. Lundt comes into the exam room and says that Aiden looked great. His last Holter monitor was perfect; there were no runs of tachycardia. Apparently, we have his medications right. The chylothorax is still there, but he isn't leaking anymore. So, Aiden can go on a low fat diet and not just no fat. And the best news of all.... instead of going in twice a month, we now get to go every two months. The last appointment was Monday. We had a follow up with Aiden's ENT. Aiden being premature and having Down syndrome means that Aiden has really small ear canals. All of the hearing tests were failed in his left ear. So we go in for what is called an ABR test. Aiden failed it and it was discovered that there is fluid in his middle ear on the left side. We were referred to this ENT several months ago. At our first appointment, the ENT was scared of Aiden's heart. He wanted us to come back after three months to see if the canals would open up and drain the fluid that is blocking Aiden's hearing. Well, Monday we had that appointment. Dr. Mowry looked in his left ear and said that the amount of fluid was significantly less than it previously was. So, at this time, we are not scheduling a 6th surgery for tubes! Watch out Holland, here comes Aiden!!!!!!!!!
I think we are finally going to Holland! This last few weeks, Aiden has had several REALLY amazing dr appointments.
It started with Aiden's 1 year exam at the pediatrician's office. Aiden amazed Dr. Setter with his vocalization skills. He's up to three words that are recognizable and he vocalizes a lot of sounds. Not to mention all the laughing the kid does. Aiden loves to laugh. Aiden is also pushing through with his legs, trying to stand up. He's not crawling yet, but he wants to stand up. And since Aiden is still putting weight on at a consistant pace, we no longer have to go in once a month for a weight check. He's on a "normal" routine now.
Then last week we went for our monthly digoxin level check, chest xrays, and echo. This is a two day excursion. We have to go get the dig check and the xrays one day before the echo. Thankfully, we don't have to go all the way to the main hospital; we can go to the smaller (and closer)hospital for those. Well, at the next day's cardiologist visit, I was watching the echo being done. The echo tech was looking at a valve. Now, I have seen all of Aiden's echos. And in all of them, I have seen the leakage in the mitrial valve. Well, on this last echo, we were looking at a valve and I had to ask which valve it was. When Kim said the mitrial valve, I had to take another look. There was no leakage.
When Tracy came in to get Aiden's vitals, she put on the pulse ox monitor. Even with a full blown cold, Aiden's sats were 98-99. There was a really long wait between seeing Tracy and Dr. Lundt. Really long. Long enough that I just knew that Aiden was going to get admitted. Dr. Lundt comes into the exam room and says that Aiden looked great. His last Holter monitor was perfect; there were no runs of tachycardia. Apparently, we have his medications right. The chylothorax is still there, but he isn't leaking anymore. So, Aiden can go on a low fat diet and not just no fat. And the best news of all.... instead of going in twice a month, we now get to go every two months.
The last appointment was Monday. We had a follow up with Aiden's ENT. Aiden being premature and having Down syndrome means that Aiden has really small ear canals. All of the hearing tests were failed in his left ear. So we go in for what is called an ABR test. Aiden failed it and it was discovered that there is fluid in his middle ear on the left side. We were referred to this ENT several months ago. At our first appointment, the ENT was scared of Aiden's heart. He wanted us to come back after three months to see if the canals would open up and drain the fluid that is blocking Aiden's hearing. Well, Monday we had that appointment. Dr. Mowry looked in his left ear and said that the amount of fluid was significantly less than it previously was. So, at this time, we are not scheduling a 6th surgery for tubes!
Watch out Holland, here comes Aiden!!!!!!!!!