However, IS has taken a toll. Sam's brain, in a sense, has had to re-wire itself and find new pathways to send messages. So for Sam to get from A to B... he must go from A to Z to Q to B. It is the long way around and sometimes he gets there and sometimes he gets lost along the way. Unfortunately for Sam, he sometimes gets distracted somewhere between Z and Q. He has been having some issues at school and sometimes he hits or exhibits other poor choices.... impulsiveness, lack of focus. This is nothing new but it is often difficult to assess what is a "problem" and what is developmentally appropriate naughty little boy.
So after much discussion and hand wringing and contemplation, we a started Sam on Guanfacine (or Tenex)
Guanfacine (Tenex) was originally developed as, and is still used as, a mild antihypertensive. Like some other antihypertensive drugs, Guanfacine (Tenex) regulates levels of the neurotransmitter norepinephrine; in the prefrontal cortex of the brain, it decreases sensitivity to distracting stimuli, and it therefore may help with focus. For this reason, it can be helpful in reducing ADHD symptoms , either alone or in combination with stimulants.
I have mixed feelings about this. This topic has been discussed and brought up a lot over the past several years... a topic that has never left a good taste in my mouth but one that I knew I would one day have to swallow. On one hand I feel that Infantile Spasms (not to mention everything else) has robbed Sam of so much and if this will help him make those connections faster and help him to be less frustrated and more focused... fabulous. On the other hand I hate adding another med to Sam's daily routine. On the upside... the side effects are very minimal (virtually none) so there really is no down side in trying. Sam is on the cusp of really grasping so many new things and I can't help but wonder... if he had just a wee bit of help could he finally complete some of those loose connections in in brain and unlock a few more doors??
Am I wrong to ask for more? Considering the gift we have already been given... is it wrong for me to say "Thank you God for the miracle... now may I have another?" Is it too much for me to hope for that one day Sam might learn to read, or be potty trained, or have a conversation with me about the weather ?? Am I selfish for wanting more than I was ever promised?
Look at those faces and tell me that I am wrong for wanting so much for them.
So we will see how it goes....