Almost every class all through high school I sat next to my friend Helena. Behind us sat Emma and Idha, and behind them Elli and Anna. Every class, every day for the last two years of high school. I can honestly say that the subject we were learning was sometimes neglected because of other more important topics such as the next party, boys or whatever else flows through a teenagers brain when bored in class. Sometimes we were discussing the future. Helena had (maybe has, I need to ask her) a passion for dolphins and one of her goals was to swim with dolphins. I was reminded of it tonight as our friend Karin called to tell us to turn on 3SAT, a TV channel.
There was a documentary on TV tonight called “Tim Should be Dead but He is Alive” (translated straight from German). It was about a 7 year old boy with DS. His biological mother had wanted a late abortion -she had found out the baby had DS) but the boy survive. He was adopted into a family as the biological mother wanted nothing to do with him. She actually sued the Dr as she thought it was his fault the baby did not die. I missed the first 30 minutes, but Tim was now 7 years old. I am guessing he also had autism, as he had a hard time focusing the eyes and also did not communicate at all- but that is just a guess. At the time Tim was born he was 32 cm and weighed 690g. Anyways, what was interesting was that he was going through most of the same therapies as we families with DS members tend to do: logopedi, physio therapy, ergo therapy etc etc. Maybe due to the early birth, maybe due to DS, maybe for some other reason he was still not talking, walking or eating on his own. So the family paid Euro 8000 for a family vacation and took him to Key Largo to have some therapy sessions with dolphins. The session helped Tim a lot and after just a few sessions he had learned to be somewhat more independent - he now could drink on his own and walked by just holding his adopted mom’s hand. It was cool to see that it actually worked and he was making progress.
Also, if you have seen my entry about the Big Box and how information sometimes is hard today was a new milestone for me. This was the first documentary I watched about DS. For me it has been hard to see the movies and documentaries that are around. But today I did it (together with Bookie) and I felt good. I could listen to what was said and hear the information, not just lining up “What If” scenarios for Vincent’s future. So cheers for me who are learning to cope and deal.