Today is the first day of Down Syndrome Awareness Month. I have been mulling over all I have learned by having Eon in our lives and am convinced that, without him, we would not be pursuing adoption, not just because we would have no idea or vested interest in what happens to kids with Down syndrome in other countries, but also because his life has so changed our perspective and even our world view.
Having Eon has taught me that we have so very little control over what happens in our lives...not nearly as much as we think we do. That is alternately terrifying...and freeing! When Eon was having heart surgery, I wrote that there is a fear born of faith. I have faith enough to know that God is in control, yet fear that His ways are not my ways. But, disability and surgery forced me to explore what I really believe about God and His goodness. In November of 2009, 10 months after Eon's birth, I wrote :
Even if my world changes tomorrow and the unthinkable should happen, it's going to be ok. Nothing surprises God. His grace is sufficient for me. He has promised to meet all my needs and He is here, with me. That's what Immanuel means, you know...God with us.
Having Eon has taught me that conventional wisdom is a crock. Conventional wisdom tells us that having a child with a disability is a bad thing. Our experience, and that of thousands of others, has proven that to be false. In fact, the opposite is true. When a perceived negative turns out to be a positive, it opens up a whole world of opportunity! The fear has been removed and our hearts are freed to pursue adoption. Having Eon has taught me that the real disability lies in the minds of individuals. People are afraid of what they've not experienced and that fear prompts them to place limits where none should be. And Eon, himself, teaches me things every day:
People should be greeted enthusiastically whenever they arrive, no matter how long they've been gone.
We really should weep with those who weep and rejoice with those who rejoice, just like the Bible says.
All cookies should be Oreos or they are not worth eating.
Coffee with a loved one is so much tastier than coffee alone.
If you can't figure something out, keep trying. If you still can't get it, seek help.
Books are awesome, no matter how many times they're read.
Communication can happen in so many different ways that don't actually involve words.
Pitching in to help can be fun.
I feel like he's grown me so much in three short years. I am so blessed to be his momma and so proud of my little man! I can't wait to meet his chromosomally enhanced brother and see what he brings to the table, as well.