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Congenital Heart Defects Week

Posted Feb 09 2011 9:25pm
Ahh, February. The month of love. Hearts are everywhere in preparation for Valentines Day.

For me, and other "heart moms", the week before Valentines Day signals the beginning of CHD Awareness week. All over facebook land, I've been seeing profile pictures depicting this week. Every day 96 babies are born with a CHD. That's one every 15 minutes. More children die from CHD's than all of the childhood cancers combined. Yet, CHDs get a fraction of the funding and awareness that cancer does.
I haven't posted anything on it until today. I even changed the blog to a "heart theme". It hasn't slipped my mind, but I tend to not want to think about it.  
Now, don't get me wrong. I'm all for CHD awareness, just not this week. It's a blatant slap-in-the-face reminder that 4 years ago, my child's chest was cut open and all hell broke loose. Yeah, I really don't like that reminder. I remember all the anxiety, the tears, the fears, the questions. And as I got to thinking today, every 2.5 years my child undergoes another procedure where his doctors want to crack open his chest and play with his heart. July will mark the 2nd anniversary of his pacemaker surgery.... 
Chris was watching a show the other day and they were highlighting a SuperBowl commercial with a child sized Darth Vader.

The child in the commercial is a 6 year old with a CHD and a pacemaker. He's never seen any of the Star Wars movies, and did his "research" online.
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