Health knowledge made personal

Donna

Richmond, Virginia
Blog: http://ourlifewithalex.blogspot.com/
I'm a working mom with two children.  My oldest child, Alexandra, is 8 years old and clinically diagnosed with Angelman Syndrome.  My blog, www.ourlifewithalex.blogspot is dedicated to the special journey our family is on with our very special girl.  This blog chronicles our family... Full Bio
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Field Day Fun! by Donna Posted in: Blog Posts in Children's Health Third grade Field Day, what could be more fun?!? Last Friday was Zach's field day.  I swear it seems like yesterday he was in Kindergarten and didn't know what to expect. ... Read on »
School Pictures by Donna Posted in: Blog Posts in Children's Health You know when you see something all the time and you just don't recognize or notice little things because you see it all the time - and then for some reason you notice that ... Read on »
Buddy Ball! by Donna Posted in: Blog Posts in Children's Health    And they are off for first base!  Getting ready to make it to third! And rounding home! Getting a "good job" from her friend Greg! And hangi ... Read on »
The Little Feet Meet by Donna Posted in: Blog Posts in Children's Health My co-worker Angel showed up to cheer her on too! No matter how hard we tried we could not get her smiling for any pictures...and that is NOT like her! The n ... Read on »
A Brag On My Boys! by Donna Posted in: Blog Posts in Children's Health Last Tuesday night we went to the Division of Police's Spring Awards Ceremony where Aaron received two awards.  His division received a certificate of merit as a group and A ... Read on »
Two Recent Appointments by Donna Posted in: Blog Posts in Children's Health We had two recent appointments - one really good, one not so good.  Last week we went to Children's Hospital to have an Assistive Technology evaluation to try and find, yet ... Read on »
Long Weekend at the Beach! by Donna Posted in: Blog Posts in Children's Health      How cute are they?!?  Read on »
Intensive Physical Therapy by Donna Posted in: Blog Posts in Children's Health Before I start this post - let me say thank you for all the phone calls, cards, texts and Facebook messages regarding my last post.  It means the world to me and sometimes j ... Read on »
Neurology Update by Donna Posted in: Blog Posts in Children's Health It's taken a while for me to be able to sit and write about the neurology update.  While I truly appreciated the Doctor taking a ton of time to speak with us, something I'm ... Read on »
Random Stuff by Donna Posted in: Blog Posts in Children's Health  He is so smart and will sit, stay, give you his paw (actually both paws), lay down and dance....yet he STILL can't figure out that he ... Read on »
Seizure Update by Donna Posted in: Blog Posts in Children's Health It's taken me a few days to be able to write about the EMU update.  So much stuff going on right now.  Unfortunately Alex did not have any seizures while we were in the hos ... Read on »
EMU Visit by Donna Posted in: Blog Posts in Children's Health Back at the EMU - this is our third visit here for Alex's seizure monitoring.  We got here Monday morning, but there were three of us getting admitted at the same time so we ... Read on »
Going Crazy! by Donna Posted in: Blog Posts in Children's Health I started this post last week, but couldn't get around to finishing it! So apparently we had a leak under our dishwasher.  And apparently it had been going on for quite s ... Read on »
Seizure Alarm by Donna Posted in: Blog Posts in Children's Health But boy oh boy am I happy!!!  This is Alex's new MedPage MP5 seizure alarm system!! This is the sensor that goes underneath her mattress and connects to th ... Read on »
Meet Rudy! by Donna Posted in: Blog Posts in Children's Health Fast forward to Christmas Eve - Santa made an early delivery.  I never in my wildest imagination thought Aaron would tell Elfie it was OK so needless to say I was BEYOND sho ... Read on »
Merry Christmas! by Donna Posted in: Blog Posts in Children's Health Zach was quite happy to go first! His expressions crack me up - we are VERY into football right now so receiving a box of football cards with all the 2012 N ... Read on »
More Seizures by Donna Posted in: Blog Posts in Children's Health Last Wednesday we had our scheduled visit with Alex's neurologist.  She's been seizing, on average, about 2-3 times a week.  Her blood levels looked good so the doctor decid ... Read on »
Buddy Ball! by Donna Posted in: Blog Posts in Children's Health    It was truly an awesome morning.  I loved every single second of it and I had a smile on my face the entire day.  It's an event I think ev ... Read on »
Sibling Love by Donna Posted in: Blog Posts in Children's Health And she was SO happy to have him all to herself.  She kept reaching up to him to hug and kiss him. It was such a sweet site to see.  For a brief min ... Read on »
Happy Birthday Alex!!! by Donna Posted in: Blog Posts in Children's Health 11.  Wow.  In some ways it's so hard to believe my baby girl is 11, and in some ways it feels like I have no clue what my life was like before this journey.  When you have c ... Read on »
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