Thanks to some enlightened and well-researched yahoo group members, and their forward-thinking doctors, a few of us are geared up to try a completely new dietary approach at managing our SIBO – a low-histamine diet. We’re still gaining clarity on the connection between histamine and small intestinal bacterial overgrowth, so a review of the relevant lit is yet to come. In the meantime, you can do a cursory google search and see that the Rosacea community is ahead of the SIBO community in making this connection.
In the wake of Thanksgiving and yet another unsuccessful Xifaxan course, I had to throw something up on the blog about getting ready to trial this diet. I’ve had this entry up all day long; its been lingering in the background behind my work and research. It has actually been that difficult to think of the right words. This is only partially because of brain fog. And it’s a slow day at the office. Mostly it is hard to know just what to say about the duality of emotions that I’m having about this new approach.
I’ve been reading about food chemical intolerance since I’ve been sick, especially this site, of course, and I just never thought it could apply to me. Bloating and distention are so vague. But time has crept up on me has it not? I’ve had SIBO for 3 years now. I don’t just get bloated and distended. I have migratory myalgia. I have sleep disturbances. I am crazy tired. I have a low body temperature. I get brain fogged and confused and angry and weepy and terrified and anxious and I obsess on my own death. I didn’t just struggle to lose 35 lbs over the course of two slow agonizing years, I gained 2/3 of the weight back overnight after I bought the Nourishing Traditions book and made my own kefir and bone broths at home. I’m freaking out and the quality of my life is going down and the Xifaxan isn’t working the way it used to.
I thought being sensitive to food chemicals would make me special, and I haven’t, through the three years of shitty doctor visits and normal lab results, felt that I deserved to feel special. So I have yet to go down the food chemical path. Until now.
Will this lead to a more exhaustive investigation? We’ll see – this is really new territory for me and my diet is super histamine-y. I am tempted to jump into FAILSAFE but I think I should take things easy and first get used to a life without cheese. Cry.