I just wanted to make a quick note about Prednisone, as many people with UC (and many other diseases) end up taking it. Back when UC was a very minor part of my life, my biggest fear (because surgery didn’t even seem like a possibility) was having to take Prednisone. I try to talk to the physicians out of prescribing it, but eventually it made sense as the next step in trying to manage my UC. I was freaking out about the side-effects, the weight gain, the moon face, the long-term consequences.
But when I started taking it, it made me feel better and I had almost no side-effects. I had some difficulty sleeping and I didn’t feel full as quickly (my satiation point seemed to disappear somewhat) but that’s it. When I was in the hospital, I was on ridiculously high amounts and it really didn’t effect me much. I was concerned because it looked like I would be taking it once a year or so for about a month, but the physician told me that taking it that infrequently probably didn’t have much effect long-term.
I’m not saying that Prednisone is pleasant and I know that some people have absolutely awful experiences with it. I just want to point out that it can make you feel a lot better and if medically it makes sense for you to try it, know that it may not be as awful as you anticipate.
CopingTime to put some of that psychology book-learnin’ to work!...