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dancing65roses

., Wisconsin
My name is Carla. I love to dance. I'm 23 with cystic fibrosis trying to learn how to live my life.
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Wednesday Thinklings by dancing65roses Posted in: Blog Posts in Cystic Fibrosis  *I feel so healthy!  *I love this photo from the masquerade ball!  *I feel so healthy!  *I can't believe how good I feel!  *I'm taking about 80% fewer naps!  *I'm qui ... Read on »
Defying Gravity on Wednesday by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I want to scream from the rooftops "I'm ALL BETTER!!!" I want to dance and spin and jump up and down BECAUSE I CAN! I am loving the song "Defying Gravity" (the Glee ver ... Read on »
Great Strides by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Great Strides is Today!!! I'll be walking this morning with friends and family. We raised over $5,000 this year. Not bad considering our team is significantly smaller. ... Read on »
"You Are My Sunshine" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis "You Are My Sunshine" is the state song of Louisiana. I think I was really supposed to be born there. I absolutely love it (except for the fact that there is all that DAMN ... Read on »
Today by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I will focus on today. I will focus on this hour. I will focus on this minute. That is how I will survive. Things have gone bad - my PTSD is pretty much out of contr ... Read on »
Live, Laugh, Love by dancing65roses Posted in: Blog Posts in Cystic Fibrosis The words "Live, Laugh, Love" hang in my living room. I try everyday to live up to them. Lately I've been feeling lost, confused, and even sad. But the one thing I never ru ... Read on »
Hattie Hippo Says Hello by dancing65roses Posted in: Blog Posts in Cystic Fibrosis It's 1am; I'm feeling a little silly and I have a hippopotamus who wants to say Helllllooooooooooo! -- Post From My iPhone Read on »
Craaazy. And Changes by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I want to make changes to my site. Like linking it so that every post shows up on Facebook. And I want to redo my profile. My life isn't just about CF - it's also about d ... Read on »
Honesty in Short Phrases by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I want to be more open and honest about my mental issues/illnesses/craziness. Whatever you want to call it, I want to talk about it. I was young. 10 years ago. I thoug ... Read on »
Hattie the Hippo by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I would like to talk about my vacation to Vegas and the wonderful experience of meeting a CF online friend, but I'm exhausted. So here's this little post instead. For Ea ... Read on »
For Dad by dancing65roses Posted in: Blog Posts in Cystic Fibrosis This is just for you, Dad. We're waiting for O to start, so I had time to take and post this. :-). And notice I'm wearing my new Cirque zip up sweater! -- Post Fr ... Read on »
Seven by dancing65roses Posted in: Blog Posts in Cystic Fibrosis It has been more than SEVEN months since I have had IV antibiotics for my cystic fibrosis. I know I say this every time another month passes, but I used to have to do t ... Read on »
A Rant by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I recently have tried to make my blog more positive. To stop ranting. Because I get a shitstorm of bad comments when I complain. Too damn bad. I need this rant today. Fi ... Read on »
Photos of a couch adventure by dancing65roses Posted in: Blog Posts in Cystic Fibrosis The stuffed side of the room One last old couch photo Empty side of the room Where I had to put the couch so the new one co ... Read on »
I Hope The New Couch Comes With Yarn Storage by dancing65roses Posted in: Blog Posts in Cystic Fibrosis My mom and I special ordered a couch for my house. I call it the New Couch. It is scheduled to arrive in late April - 12 weeks from when we ordered it. This is a little g ... Read on »
Spinning by dancing65roses Posted in: Blog Posts in Cystic Fibrosis The world Always spinning Always spinning Always spinning I ask it to slow I tell it to stop Always spinning Always spinning Always spinning Out of control I ... Read on »
The Best Babysitter by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Normally, I am a very good, very enthusiastic babysitter. I love the kids and I don't mind doing things like changing diapers and making lunch. But today, I am tired. So I ... Read on »
How to be Helpful by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm sick. Most of the time I don't look sick, but I am. And often, I need help. I have goals and dreams and ideas and I don't have the energy to accomplish 1/3 of the thi ... Read on »
A little update by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm on my way to making it SEVEN months without IV antibiotics. A couple years ago I went 5 months, but since then it has been every 2.5 or 3 months. I'm so thankful for thi ... Read on »
Wishing by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm wishing for the rest of my energy to return. I think I'm so sleepy because of a sinus infection, so hopefully I'll keep doing stuff to clear out my sinuses and I'll keep ... Read on »