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dancing65roses

., Wisconsin
My name is Carla. I love to dance. I'm 23 with cystic fibrosis trying to learn how to live my life.
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Beautiful Words by dancing65roses Posted in: Blog Posts in Cystic Fibrosis  These are the beautiful words Kyra wrote about one of my recent posts.  After her comment, I will write a little about what she said.   Kyra S. has left a new comment ... Read on »
Like Oprah and Law & Order by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm disowned again.  Maybe just for today or this week, or maybe for a long time.  So Oprah, Law & Order and I have a club.  I'm barely holding it together.  "Like a G6" ... Read on »
Mental Me by dancing65roses Posted in: Blog Posts in Cystic Fibrosis It's 3am and I'm up.  I'm up, listening to "Like a G6" and writing... well, waiting for inspiration and play Bejeweled.  I'm sort of a mental mess right now, and I have real ... Read on »
Proud Mental Case by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I just saw a commercial saying 1 in 6 adults has a mental illness.  I am proud to be one of them - proud to have gotten treatment with therapy and medication and proud to co ... Read on »
Life in Fragments by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I don't feel I have time to write a complete blog post.  So here is one in fragments... Loving life. Doing some volunteer secretary work and dance training. Taught firs ... Read on »
Mr. Big Turns Two by dancing65roses Posted in: Blog Posts in Cystic Fibrosis The Bean, Luca-Bean, Luca-Bug, Buddy, Bug, Mr. Big, LLBean (Little Luca Bean), Mama's Teddy Bear. Luca. So many nicknames for such a sweet little boy. Today you are ... Read on »
Conversations by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I have had a few awesome conversations recently.  Have fun! The mind of a five-year-old Maddy: Do you still have your tattoo? Me: Yep! Maddy (exasperated): Ah, when ... Read on »
The new nap by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm having a bad day. I'm lonely and having trouble getting over what happened this morning. I don't know if it was a true flashback but i didn't like it. So I'm going t ... Read on »
Holding Hands by dancing65roses Posted in: Blog Posts in Cystic Fibrosis It's early morning and I'm sitting on my couch knitting.  My needles clicking fast - trying to finish one scarf so I can finish another.  Suddenly, I burst into tears.  Only ... Read on »
Trading Genes by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Can I trade my Genes in for something?  Another set of Genes?  A pair of Jeans that fit correctly?  I'm getting a little tired of MY Genes (sorry Mom and Dad - you kinda gav ... Read on »
Pumpkins and Apples by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Last Saturday was an amazing day! Chris, Kyra and Luca   met my parents and me at an apple farm near my house.  My goal for this year was to be with Luca when he got his fir ... Read on »
The Return of Big Ugly by dancing65roses Posted in: Blog Posts in Cystic Fibrosis A long time ago - about three years, I wrote about first a home health company bringing Big Ugly to me, and then a couple months later taking him away.  Big Ugly was my firs ... Read on »
Diary of a Trip Home by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Today I am on my way home. I'm going to update with thoughts as I go. •SkyCabs are awesome. And sooo nice! Checked in so easily! And now on my way to security!!! •Thro ... Read on »
Rants and Revelations by dancing65roses Posted in: Blog Posts in Cystic Fibrosis On Sunday my friends and I went to Bumbershoot, a music and arts festival in Seattle.  There was one show I really wanted to see - the Axis Dance Company.  They are a dance ... Read on »
Day 3 in Seattle by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Today is my third day in Seattle. And yep, that's about right - I can go for 3 days and then rest for at least one. Yesterday I had some revelations, and was also very u ... Read on »
Waiting in an Airport by dancing65roses Posted in: Blog Posts in Cystic Fibrosis This is me during a really long layover at MSP. There's not much to say about it except I was bored, missed flying with someone to talk to, and oh yeah, I almost missed my ... Read on »
Hotel Royalty by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I feel like a princess. I'm in Seattle. I am staying with friends for 10 days (probably way past my welcome! Didn't someone once say 'fish and house guests start to stink af ... Read on »
Making the Serial Killers Mad by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Oh what a day! And it's only 9:20am. I woke up at 6am - a little earlier than I needed to, but I like to get things done in the morning before I go to work.  I was looki ... Read on »
One Year Free by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm officially 100% IV Free for One Year.  To celebrate, my parents and I threw a party on Saturday.  It was wonderful - almost all my favorite people were there, and everyo ... Read on »