dancing65roses's Posts

The Best by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I think I have determined my problem, but for the life of me I cannot come up with a solution. I want to be the best. At everything. My problem is I am too good at ... Read on »

180 by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I am going to admit my weight publicly on my blog. I weigh 180, and I'm so proud because about a month ago I weighed almost 190. When I went to clinic in November I was re ... Read on »

Daily Updates by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm doing well. I want to write about my job, my weight, my feelings on life and death, and other assorted things, but who has the time?? I just wanted to quickly pos ... Read on »

Oxygen Face by dancing65roses Posted in: Blog Posts in Cystic Fibrosis So I think I have a permanent case of Oxygen Face. Oxygen Face is what I call the indents from the nasal cannula on your cheeks. This is going to be a very short post ... Read on »

Is It December Yet? by dancing65roses Posted in: Blog Posts in Cystic Fibrosis So I was pretty sure it was December until I called a friend back and we had to go through all the issues we fought about in OCTOBER. OCT - to the - OBER. The month with H ... Read on »

Thanks on Thanksgiving by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Today is Thanksgiving. Usually I love to post all the things I am thankful for and talk about them, but this year I'm not feeling completely thankful. I'm struggling with de ... Read on »

So Lately by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Recently things have been hard; it's been hard to get off my butt and do anything. It's hard to not think about my mother or the friendship that got screwed up. In hard ti ... Read on »

Beautiful Words by dancing65roses Posted in: Blog Posts in Cystic Fibrosis These are the beautiful words Kyra wrote about one of my recent posts. After her comment, I will write a little about what she said. Kyra S. has left a new comment ... Read on »

Like Oprah and Law & Order by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm disowned again. Maybe just for today or this week, or maybe for a long time. So Oprah, Law & Order and I have a club. I'm barely holding it together. "Like a G6" ... Read on »

Mental Me by dancing65roses Posted in: Blog Posts in Cystic Fibrosis It's 3am and I'm up. I'm up, listening to "Like a G6" and writing... well, waiting for inspiration and play Bejeweled. I'm sort of a mental mess right now, and I have real ... Read on »

Proud Mental Case by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I just saw a commercial saying 1 in 6 adults has a mental illness. I am proud to be one of them - proud to have gotten treatment with therapy and medication and proud to co ... Read on »

Life in Fragments by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I don't feel I have time to write a complete blog post. So here is one in fragments... Loving life. Doing some volunteer secretary work and dance training. Taught firs ... Read on »

Mr. Big Turns Two by dancing65roses Posted in: Blog Posts in Cystic Fibrosis The Bean, Luca-Bean, Luca-Bug, Buddy, Bug, Mr. Big, LLBean (Little Luca Bean), Mama's Teddy Bear. Luca. So many nicknames for such a sweet little boy. Today you are ... Read on »

Conversations by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I have had a few awesome conversations recently. Have fun! The mind of a five-year-old Maddy: Do you still have your tattoo? Me: Yep! Maddy (exasperated): Ah, when ... Read on »

The new nap by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm having a bad day. I'm lonely and having trouble getting over what happened this morning. I don't know if it was a true flashback but i didn't like it. So I'm going t ... Read on »

Holding Hands by dancing65roses Posted in: Blog Posts in Cystic Fibrosis It's early morning and I'm sitting on my couch knitting. My needles clicking fast - trying to finish one scarf so I can finish another. Suddenly, I burst into tears. Only ... Read on »

Trading Genes by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Can I trade my Genes in for something? Another set of Genes? A pair of Jeans that fit correctly? I'm getting a little tired of MY Genes (sorry Mom and Dad - you kinda gav ... Read on »

Pumpkins and Apples by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Last Saturday was an amazing day! Chris, Kyra and Luca met my parents and me at an apple farm near my house. My goal for this year was to be with Luca when he got his fir ... Read on »

The Return of Big Ugly by dancing65roses Posted in: Blog Posts in Cystic Fibrosis A long time ago - about three years, I wrote about first a home health company bringing Big Ugly to me, and then a couple months later taking him away. Big Ugly was my firs ... Read on »

Diary of a Trip Home by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Today I am on my way home. I'm going to update with thoughts as I go. •SkyCabs are awesome. And sooo nice! Checked in so easily! And now on my way to security!!! •Thro ... Read on »

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