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dancing65roses

., Wisconsin
My name is Carla. I love to dance. I'm 23 with cystic fibrosis trying to learn how to live my life.
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Lactaid Life by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I don't know what to eat.  I'm trying to lose weight - about 15-20lbs.  That would suggest a low-fat diet.  I'm diabetic which means low-carb diet, and now I've determined I ... Read on »
Goodbye Grandpa by dancing65roses Posted in: Blog Posts in Cystic Fibrosis My grandfather passed away in March and I've been meaning to post the eulogy I gave.  Here it is Walter was my grandpa.  He was also my hero.  We all knew him and loved him ... Read on »
Lucky by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Lately I've been feeling really lucky.  A woman I knew online died.  She was my age and had a double lung transplant but didn't have CF.  The headline on her blog is " ... Read on »
Graduation by dancing65roses Posted in: Blog Posts in Cystic Fibrosis May is busy.  I am attending 2 graduations, Great Strides, and trying to balance work and my life.  This spring feels like my graduation - a graduation into life.  I'm being ... Read on »
Update on Me by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I've been busy.  Too busy at times, but I love being busy. I've been thinking a lot lately - about my blog, my book and my personal journal.  I want to write more.  The ... Read on »
Love by dancing65roses Posted in: Blog Posts in Cystic Fibrosis My goal in life is to love and be loved.   It's that simple.  Last night I got an email from Chris and I want to share it here because I felt so loved.  Here it is Hello ... Read on »
REASON 4,511 by dancing65roses Posted in: Blog Posts in Cystic Fibrosis So I've been busy since getting out of the hospital and getting rid of all my strings.  I have work, and friends and family, and all those projects I have...  But I was t ... Read on »
No Strings by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I've got no strings.  It's been 5 days since I finished my home IVs, and a week and 1/2 since I got home from the hospital.  Hopefully I'll be blessed enough to go another 1 ... Read on »
Hospital: Day One Million by dancing65roses Posted in: Blog Posts in Cystic Fibrosis It feels like I have been here forever.  I've only been here since late on Wednesday.  The getting better is going more slowly than usual - and I'm not happy about it.  I am ... Read on »
Rinse, Repeat, IVs by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm back in the hospital.  It has been 18 months since my last round of IV antibiotics and almost TWO YEARS since I've had to stay in the hospital, and here I am. I think ... Read on »
Dancing with 65 Roses by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I have cystic fibrosis.  I have other health problems, too, but CF is the biggie.  It's the one my parents stay awake at night worrying about.  No one worries because I have ... Read on »
The Best by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I think I have determined my problem, but for the life of me I cannot come up with a solution.  I want to be the best.  At everything.  My problem is I am too good at ... Read on »
180 by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I am going to admit my weight publicly on my blog.  I weigh 180, and I'm so proud because about a month ago I weighed almost 190.  When I went to clinic in November I was re ... Read on »
Daily Updates by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm doing well.  I want to write about my job, my weight, my feelings on life and death, and other assorted things, but who has the time?? I just wanted to quickly pos ... Read on »
Oxygen Face by dancing65roses Posted in: Blog Posts in Cystic Fibrosis So I think I have a permanent case of Oxygen Face.  Oxygen Face is what I call the indents from the nasal cannula on your cheeks.  This is going to be a very short post ... Read on »
Is It December Yet? by dancing65roses Posted in: Blog Posts in Cystic Fibrosis So I was pretty sure it was December until I called a friend back and we had to go through all the issues we fought about in OCTOBER.  OCT - to the - OBER.  The month with H ... Read on »
Thanks on Thanksgiving by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Today is Thanksgiving. Usually I love to post all the things I am thankful for and talk about them, but this year I'm not feeling completely thankful. I'm struggling with de ... Read on »
So Lately by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Recently things have been hard; it's been hard to get off my butt and do anything.  It's hard to not think about my mother or the friendship that got screwed up.  In hard ti ... Read on »
Beautiful Words by dancing65roses Posted in: Blog Posts in Cystic Fibrosis  These are the beautiful words Kyra wrote about one of my recent posts.  After her comment, I will write a little about what she said.   Kyra S. has left a new comment ... Read on »
Like Oprah and Law & Order by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm disowned again.  Maybe just for today or this week, or maybe for a long time.  So Oprah, Law & Order and I have a club.  I'm barely holding it together.  "Like a G6" ... Read on »