dancing65roses's Posts

"Mmmbop" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis All I can hear is "In an Mmmbop they're gone." On September 14th my best CF friend Lauren passed away. And I still can't really talk about it. I went to her grave both ... Read on »

"They Say It's Your Birthday" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis "Well it's my birthday, too, yea." It's my 23rd birthday. Usually, I don't like my birthday. That's not true. I love my birthday. I love celebrating that I have b ... Read on »

"You Are My Sunshine" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis "You Are My Sunshine" is the state song of Louisiana. I think I was really supposed to be born there. I absolutely love it (except for the fact that there is all that DAMN ... Read on »

"It's really weird when you're not leading me" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis It's true. I tend to lead no matter what I'm doing. What can I say, I'm a control freak!!! I had the most amazing weekend. Friday I practiced the two-step with my pa ... Read on »

"Rayando el Sol" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I am reaching for something that isn't there. I'm grasping at straws. Climbing a never ending stairway. "Rayando el Sol." "Rayando el Sol" is the title of my favorite ... Read on »

"The Luckiest" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I haven't written in my journal in the last several days, so I am blogging out of turn, but I will write in my journal after I finish writing this. But right now, this is m ... Read on »

(Repeat) Great Strides 2008 I'm posting this again. It's important. See big font? Means it's... by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm posting this again. It's important. See big font? Means it's important, so pay attention. Great Strides 2008 Hello Everyone! I’d like to invite yo ... Read on »

10:08 Update by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Hiding from the world is going rather well. Can't wait to take this up professionally for two weeks, do the CF walk, and then get my ass out of the country for three weeks. ... Read on »

180 by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I am going to admit my weight publicly on my blog. I weigh 180, and I'm so proud because about a month ago I weighed almost 190. When I went to clinic in November I was re ... Read on »

2am Rant by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Let's see if I'm more or less clever at 2am. I went to bed at 9pm hoping to get a good night of sleep before a huge day of dancing tomorrow. May not be quite as huge if on ... Read on »

A Combination of Things by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Look at cute photos of my dog. And now I will talk about today. Today was my first intermediate dance class with the new dance team - and it's pretty much my ... Read on »

A Crazy Life by dancing65roses Posted in: Blog Posts in Cystic Fibrosis My life has been crazy lately. And I still haven't blogged about the magical drug, and I'm planning on it, but I need a block of time first. And this weekend I'm going to a ... Read on »

A Day at the Zoo by dancing65roses Posted in: Blog Posts in Cystic Fibrosis So I have finally figured out how to post more than 5 photos in one post... It was easy, but now I know that you have to upload them backwards-ish. So these are totally ou ... Read on »

A Day of News by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Everyday I get a Google Alert email that contains every news article with "Cystic Fibrosis" in it, and usually has some blogs with CF in it too. I usually skim the email an ... Read on »

A Few Photos by dancing65roses Posted in: Blog Posts in Cystic Fibrosis A recent photo of me. What it looks like when I'm trying to write my book. My first sweater!!! I've been knitting since 2nd grade and I'm just now trying to mak ... Read on »

A Few Things by dancing65roses Posted in: Blog Posts in Cystic Fibrosis This is a post where I write about a few things. Goals, recent developments, etc. First, I have been doing the 365project since around Memorial Day - all the photos are ... Read on »

A Good Sign by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I have found Balloon Arch Guy (he was before my blogging days -like YEARS before I started blogging, he has no clue who he is, and very few of you would remember who the hel ... Read on »

A Guide to Becoming the Most Neurotic Person Ever. by dancing65roses Posted in: Blog Posts in Cystic Fibrosis ... and I mean that. This is truly how to become completely neurotic. Since I am a neurotic nightmare, the next list is not in any order of importance - except they are all ... Read on »

A Hospital Rant: Day 1, Number 1 by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Right now I am sitting in my hospital bed - in my own clothing - don't get the idea that I have to wear a silly gown or anything. I would hate that. I finally got The Lapt ... Read on »

A Hospital Rant: Day 1, Number 2 by dancing65roses Posted in: Blog Posts in Cystic Fibrosis The Obnoxious Yet Pretty Sign On My Door I just made a sign that says "NO ENTRY Except for Hospital Staff and Pre-Approved Visitors." Obnoxious, right? Right. But I' ... Read on »

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