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dancing65roses

., Wisconsin
My name is Carla. I love to dance. I'm 23 with cystic fibrosis trying to learn how to live my life.
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Soggy Grilled Cheese by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Tonight I found myself sitting at the food court at the mall, sobbing into a grilled cheese sandwich.  I had been telling my husband about the therapy session I had this mor ... Read on »
My Life Story, Abridged by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm really tired of this dance I have to do with my CF clinic.  I don't know what else to say, other than that.  My parents and I have always had to dance with the CF clinic ... Read on »
Depression Dave by dancing65roses Posted in: Blog Posts in Cystic Fibrosis On Monday, a man I have always loved committed suicide.  While I never met him in person, Robin Williams seemed like a friend.  I saw him (as characters on TV and in movies) ... Read on »
Wherein I combine all the blogs! by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I have a separate craft blog and a separate blog for travel photos, but really, I want just one blog.  So the plan is to revamp this one a little, and add in travel photos, ... Read on »
"How to be a Patient" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm going to start teaching classes on how to be a patient in the hospital.  From my most recent stays here, it is apparent these classes are very, very necessary.  Now I co ... Read on »
4th of Lucky by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I thought I was having the WORST Fourth of July weekend EVER.  Like, THE. WORST.  I'm in the hospital on my favorite holiday and my husband can't be here because he's gettin ... Read on »
Three Years Ago Today by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Three years ago today, at right about noon I pulled my car into the parking lot at the Great Dane.  Standing on the corner outside the restaurant was a boyish looking man we ... Read on »
Reason I Write by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Tonight I remembered the reason I write this blog.   I got an email from the granddaughter of a former coworker of my father.  She told me that I am amazing and stron ... Read on »
Forever Dancing by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Yesterday I was on my way home from clinic in Milwaukee.  I was feeling sad about my lung functions and something that happened to me on Thursday.  Thursday I went to get my ... Read on »
Clinic by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm sitting waiting to see my doctor.  I'm typing on my phone while I text back and forth with my husband.   I'm angry. I really wanted my FEV1 to be 56% today. It wa ... Read on »
Blogging while Biking by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I want to return to blogging regularly.  I was reading things I wrote when I first started this blog, and I had some good things to say.  I think I have more good things to ... Read on »
Great Strides 2013 by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Today is Great Strides.  I am not going. This has been a long and agonizing decision for me.  Ultimately I am doing what I can emotionally and physically and ... Read on »
Public Thank Yous and Wedding Summary by dancing65roses Posted in: Blog Posts in Cystic Fibrosis First, THANK YOU.  Thank you to everyone who came to our wedding.  Thank you to everyone who was there in spirit and will celebrate with us at our big reception next ... Read on »
Catch Up by dancing65roses Posted in: Blog Posts in Cystic Fibrosis This post is to catch up from the Paul Simon concert until today.  I know some people have wondered "Where has Carla been?"  For the most part, the answer is "with my boy ... Read on »
Bliss by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Last night I got to see Paul Simon in concert. My boyfriend (I'm still a little, "wait, I have a boyfriend?") got the tickets for my Christmas present. We had an amazing din ... Read on »
"Mmmbop" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis All I can hear is "In an Mmmbop they're gone." On September 14th my best CF friend Lauren passed away.  And I still can't really talk about it.  I went to her grave both ... Read on »
Giving it a Go by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I don't remember how to do this - the blogging thing.  I used to write almost every day and sometimes more than once a day.  I used to sit in front of my computer all day wa ... Read on »
Cystic Fibrosis, as told by two by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Today I saw on Facebook that my friend Meranda posted this as her status My Attending said he thinks a CF patient will figure out the disease before a researcher after he ... Read on »
PTSD Triggers by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm dedicating this post to PTSD triggers - and the fact that they exist and I still am learning how to deal with them.  I'm working on being able to talk about what happene ... Read on »
No Regrets by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm sorry I wasn't good enough. I'm sorry I was too perfect.  I'm sorry I was too sick. I'm sorry I never told anyone. I'm sorry no one believed me. I'm sorry we grew ... Read on »