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dancing65roses

., Wisconsin
Blog: http://dancing65roses.blogspot.com/
My name is Carla. I love to dance. I'm 23 with cystic fibrosis trying to learn how to live my life.
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Catch Up by dancing65roses Posted in: Blog Posts in Cystic Fibrosis This post is to catch up from the Paul Simon concert until today.  I know some people have wondered "Where has Carla been?"  For the most part, the answer is "with my boy ... Read on »
Bliss by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Last night I got to see Paul Simon in concert. My boyfriend (I'm still a little, "wait, I have a boyfriend?") got the tickets for my Christmas present. We had an amazing din ... Read on »
"Mmmbop" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis All I can hear is "In an Mmmbop they're gone." On September 14th my best CF friend Lauren passed away.  And I still can't really talk about it.  I went to her grave both ... Read on »
Giving it a Go by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I don't remember how to do this - the blogging thing.  I used to write almost every day and sometimes more than once a day.  I used to sit in front of my computer all day wa ... Read on »
Cystic Fibrosis, as told by two by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Today I saw on Facebook that my friend Meranda posted this as her status My Attending said he thinks a CF patient will figure out the disease before a researcher after he ... Read on »
PTSD Triggers by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm dedicating this post to PTSD triggers - and the fact that they exist and I still am learning how to deal with them.  I'm working on being able to talk about what happene ... Read on »
No Regrets by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm sorry I wasn't good enough. I'm sorry I was too perfect.  I'm sorry I was too sick. I'm sorry I never told anyone. I'm sorry no one believed me. I'm sorry we grew ... Read on »
Wheels by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I've got new wheels; he arrived today via UPS.  I shall name him Wally, and he shall be my new wheelchair.  My old wheelchair had a few issues (really just a transport c ... Read on »
Lactaid Life by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I don't know what to eat.  I'm trying to lose weight - about 15-20lbs.  That would suggest a low-fat diet.  I'm diabetic which means low-carb diet, and now I've determined I ... Read on »
Goodbye Grandpa by dancing65roses Posted in: Blog Posts in Cystic Fibrosis My grandfather passed away in March and I've been meaning to post the eulogy I gave.  Here it is Walter was my grandpa.  He was also my hero.  We all knew him and loved him ... Read on »
Lucky by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Lately I've been feeling really lucky.  A woman I knew online died.  She was my age and had a double lung transplant but didn't have CF.  The headline on her blog is " ... Read on »
Graduation by dancing65roses Posted in: Blog Posts in Cystic Fibrosis May is busy.  I am attending 2 graduations, Great Strides, and trying to balance work and my life.  This spring feels like my graduation - a graduation into life.  I'm being ... Read on »
Update on Me by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I've been busy.  Too busy at times, but I love being busy. I've been thinking a lot lately - about my blog, my book and my personal journal.  I want to write more.  The ... Read on »
Love by dancing65roses Posted in: Blog Posts in Cystic Fibrosis My goal in life is to love and be loved.   It's that simple.  Last night I got an email from Chris and I want to share it here because I felt so loved.  Here it is Hello ... Read on »
REASON 4,511 by dancing65roses Posted in: Blog Posts in Cystic Fibrosis So I've been busy since getting out of the hospital and getting rid of all my strings.  I have work, and friends and family, and all those projects I have...  But I was t ... Read on »
No Strings by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I've got no strings.  It's been 5 days since I finished my home IVs, and a week and 1/2 since I got home from the hospital.  Hopefully I'll be blessed enough to go another 1 ... Read on »
Hospital: Day One Million by dancing65roses Posted in: Blog Posts in Cystic Fibrosis It feels like I have been here forever.  I've only been here since late on Wednesday.  The getting better is going more slowly than usual - and I'm not happy about it.  I am ... Read on »
Rinse, Repeat, IVs by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm back in the hospital.  It has been 18 months since my last round of IV antibiotics and almost TWO YEARS since I've had to stay in the hospital, and here I am. I think ... Read on »
Dancing with 65 Roses by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I have cystic fibrosis.  I have other health problems, too, but CF is the biggie.  It's the one my parents stay awake at night worrying about.  No one worries because I have ... Read on »
The Best by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I think I have determined my problem, but for the life of me I cannot come up with a solution.  I want to be the best.  At everything.  My problem is I am too good at ... Read on »
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