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dancing65roses

., Wisconsin
My name is Carla. I love to dance. I'm 23 with cystic fibrosis trying to learn how to live my life.
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Reason I Write by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Tonight I remembered the reason I write this blog.   I got an email from the granddaughter of a former coworker of my father.  She told me that I am amazing and stron ... Read on »
Forever Dancing by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Yesterday I was on my way home from clinic in Milwaukee.  I was feeling sad about my lung functions and something that happened to me on Thursday.  Thursday I went to get my ... Read on »
Clinic by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm sitting waiting to see my doctor.  I'm typing on my phone while I text back and forth with my husband.   I'm angry. I really wanted my FEV1 to be 56% today. It wa ... Read on »
Blogging while Biking by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I want to return to blogging regularly.  I was reading things I wrote when I first started this blog, and I had some good things to say.  I think I have more good things to ... Read on »
Great Strides 2013 by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Today is Great Strides.  I am not going. This has been a long and agonizing decision for me.  Ultimately I am doing what I can emotionally and physically and ... Read on »
Public Thank Yous and Wedding Summary by dancing65roses Posted in: Blog Posts in Cystic Fibrosis First, THANK YOU.  Thank you to everyone who came to our wedding.  Thank you to everyone who was there in spirit and will celebrate with us at our big reception next ... Read on »
Catch Up by dancing65roses Posted in: Blog Posts in Cystic Fibrosis This post is to catch up from the Paul Simon concert until today.  I know some people have wondered "Where has Carla been?"  For the most part, the answer is "with my boy ... Read on »
Bliss by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Last night I got to see Paul Simon in concert. My boyfriend (I'm still a little, "wait, I have a boyfriend?") got the tickets for my Christmas present. We had an amazing din ... Read on »
"Mmmbop" by dancing65roses Posted in: Blog Posts in Cystic Fibrosis All I can hear is "In an Mmmbop they're gone." On September 14th my best CF friend Lauren passed away.  And I still can't really talk about it.  I went to her grave both ... Read on »
Giving it a Go by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I don't remember how to do this - the blogging thing.  I used to write almost every day and sometimes more than once a day.  I used to sit in front of my computer all day wa ... Read on »
Cystic Fibrosis, as told by two by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Today I saw on Facebook that my friend Meranda posted this as her status My Attending said he thinks a CF patient will figure out the disease before a researcher after he ... Read on »
PTSD Triggers by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm dedicating this post to PTSD triggers - and the fact that they exist and I still am learning how to deal with them.  I'm working on being able to talk about what happene ... Read on »
No Regrets by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I'm sorry I wasn't good enough. I'm sorry I was too perfect.  I'm sorry I was too sick. I'm sorry I never told anyone. I'm sorry no one believed me. I'm sorry we grew ... Read on »
Wheels by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I've got new wheels; he arrived today via UPS.  I shall name him Wally, and he shall be my new wheelchair.  My old wheelchair had a few issues (really just a transport c ... Read on »
Lactaid Life by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I don't know what to eat.  I'm trying to lose weight - about 15-20lbs.  That would suggest a low-fat diet.  I'm diabetic which means low-carb diet, and now I've determined I ... Read on »
Goodbye Grandpa by dancing65roses Posted in: Blog Posts in Cystic Fibrosis My grandfather passed away in March and I've been meaning to post the eulogy I gave.  Here it is Walter was my grandpa.  He was also my hero.  We all knew him and loved him ... Read on »
Lucky by dancing65roses Posted in: Blog Posts in Cystic Fibrosis Lately I've been feeling really lucky.  A woman I knew online died.  She was my age and had a double lung transplant but didn't have CF.  The headline on her blog is " ... Read on »
Graduation by dancing65roses Posted in: Blog Posts in Cystic Fibrosis May is busy.  I am attending 2 graduations, Great Strides, and trying to balance work and my life.  This spring feels like my graduation - a graduation into life.  I'm being ... Read on »
Update on Me by dancing65roses Posted in: Blog Posts in Cystic Fibrosis I've been busy.  Too busy at times, but I love being busy. I've been thinking a lot lately - about my blog, my book and my personal journal.  I want to write more.  The ... Read on »
Love by dancing65roses Posted in: Blog Posts in Cystic Fibrosis My goal in life is to love and be loved.   It's that simple.  Last night I got an email from Chris and I want to share it here because I felt so loved.  Here it is Hello ... Read on »