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CysticGal Patient Expert

Blog: http://cysticgal.blogspot.com/
This is my first time dedicating my writing to Cystic Fibrosis. I have written poems, plays and academic papers before, but I started to dry up as a writer. Once I realized that my focus on my health was taking me away from other writing projects, I realized, my health must become the focus of my... Full Bio
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Top Ten Things I Expect by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis 1. If I have an appointment with a doctor, I expect to, at some point, however brief or fleeting, see an actual doctor. 2. If I have been sent all over creatio ... Read on »
Cystic Gal: Cliff, Put Down That Hoagie! by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis Tonight I came upon this old blog o' mine and realized- the problem i have right now is NO DIFFERENT than the one I had before transplant. And it gives a shout out to Dr. U ... Read on »
Random Blathering (not really about CF or transplant or really anything) by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis My sister's favorite posts are the ones when I write a bunch of random stuff that comes to mind and so for sister, I say, here you are: My high school English te ... Read on »
My Top Ten Causes of Stress by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis Scary pictures of birds stress me out.  My last post made me think about things in my day that acutely stress me out. Here is my list from today. In other news, I ... Read on »
Top Ten Causes of Stress by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis These crazy pool noodle women came up when I searched for the title of this blog.  So.... #1 cause of stress: multi-generational noodle-based water aerobics?  ... Read on »
Stress and Anxiety: an elusive duo by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis I tried just now to write a coherent post about how my stress and anxiety level are so high right now, and I am having trouble controlling them. But that's all I really hav ... Read on »
Poem Drafts-o Post-o, more Iron and Wine by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis Ryan Kelly reminds me that Sam Beam is "both 'The Iron' and 'The Wine.'" I found another poem that seems to have preceded the draft I posted of "My Body ... Read on »
What is wrong with this picture? by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis I burst a tiny blood vessel in my eye. The school nurse says, "It was probably the sneezing." Sigh. I am afraid of Visine, Claymation, and puppets that look h ... Read on »
"If I Were In Charge of the World" by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis When I was eight, my mom bought me a book for my birthday called If I Were in Charge of the World (and other worries). It was a children's poetry book that I still ... Read on »
Flip Flap by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis from hyperbole and a half:  Thanks so much to all of my readers and new readers who messaged me about my last post. It is interesting that when I post poetry ... Read on »
In memory and celebration, Brian Sercus by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis Brian, I was honored to know you so briefly at such an important time in our lives' journey. You changed me forever and I will never forget you, never stop thinking of you, ... Read on »
Top Ten Totally Superficial Ways to Feel Better by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis Wow, I thought I looked better in that photo but it only the tiny kitten that looks better, and even she looks pretty miserable. Get it? Blind kitty "looks" miserable. HAH ... Read on »
"Thanks, Joshy" or "I Spent My Hopes and Dreams at SuperTarget" (Thanks Katie) by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis Wow, I thought I looked better in that photo but it only the tiny kitten that looks better, and even she looks pretty miserable. Get it? Blind kitty "looks" miserable ... Read on »
To blog or not to blog, that is the question by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis  Hello, Tiny Bloggy I am pretty sure that I have used that title before, perhaps even two times. Lately, there have been a lot of transplantiversaries of a l ... Read on »
Most Influencial Bloggers . . . What Do You Think? by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis http://www.cliohealthcare.com/winners_media/2010/pr/pdf/401000796_1_supporting.pdf Today my girl Amy and I discovered that we, and many of our bloggies, ha ... Read on »
Hey, thanks! by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis Guess what I got for Valentine’s Day?   I got a bloggy award from my friend Amy!  She has a great blog at http://www.mycfjourney.blogspot.com . Amy encourages ... Read on »
Loveliness and Weirdness by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis *This image was randomly found when googling the blog title. It is so appropriate to my week! It is soppropriate. *This is a picture of me and t ... Read on »
Balance by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis Good post, bad post Happy post, sad post. Iron & Wine post.   They will see us waving from such great heights"Come down now," they'll sayBut everything looks perfect from ... Read on »
Don’t Let Them Kill You by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis Good post, bad post Happy post, sad post. Iron & Wine post.   They will see us waving from such great heights "Come down now," they'll say But ... Read on »
Hello, Springfield and also Connecticut! by CysticGal Patient Expert Posted in: Blog Posts in Cystic Fibrosis Hello to my new readers tonight from Springfield, Mass and also from Connecticut via Catie Talarski's wonderful blog about her docu-series! I had a great night at the ... Read on »
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