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CysticGal Patient Expert

This is my first time dedicating my writing to Cystic Fibrosis. I have written poems, plays and academic papers before, but I started to dry up as a writer. Once I realized that my focus on my health was taking me away from other writing projects, I realized, my health must become the focus of my... Full Bio
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., Wisconsin
My name is Carla. I love to dance. I'm 23 with cystic fibrosis trying to learn how to live my life.

Amy Silcox

Wakefield, Massachusetts
I am a 29 year old CFer living outside of Boston. I stopped working full time right before Christmas and will be applying for SSDI soon. I live with my boyfriend and his daughter. I love to crochet and read and nothing is more satisfying than seeing something you made on someone you love.


Mobile, Alabama
Check out my blog for all the fun and crazy times. We have ups and downs and laughs and crys. We face the unstable and hectic life of facing CF and we love love love our life!!


Myrtlewood, Alabama
41 year old stay at home mom.  Married for 20 years to the most amazing man....the love of my life and my best friend.  Together we  home school our 13 yr. old son that happens to have CF.  Our Ethan  at 13 is very upbeat and pro active with his CF.  We praise God for Ethan's amazing attitude.  He's a wondefully well rounded boy with a love for history, music,...