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Horrible week. RIP Craig by Alice V. Patient Expert This week Craig Truyens passed away. Just over 2 months after his double lung transplant, all of which... Read on »
Follow Up Appointment by Amy Silcox Patient Expert Today I had my follow up appointment at MGH after my 2 weeks in house for IV antibiotics. ┬áToday's... Read on »
Upcoming Events by Alice V. Patient Expert This Friday is the CF Barnyard Fundraiser, There are still seats left! Always a super fun event, please... Read on »


Meg D. Fort Collins, Colorado
CFMama New Jersey 07419
NiQi Tanja D. Pretoria, South Africa

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blossomivfindia joined the Cystic Fibrosis Community. Sep 29 2015
Dr Larry has reached their WellPrize target. >> Congratulate 'em! Jul 13 2015


Cystic fibrosis is a common inherited condition. Cystic fibrosis is a genetic disorder in which internal bodily secretions become thick and sticky, and hinder the function of certain... » Read on
When a child is born with cystic fibrosis, symptoms usually appear in the first year of life, although occasionally they can develop later. The symptoms and related problems of cystic... » Read on
Cystic fibrosis is an inherited condition caused by a faulty gene. The gene controls the amount of salt and water that can move between cells in your body, and in those with cystic... » Read on
Most cases of cystic fibrosis are diagnosed in very early life, but some children and young adults are diagnosed later through unexplained illness. If you or your child are displaying... » Read on
If you or your child has cystic fibrosis, you should treat the condition with help and advice from a team of healthcare professionals at a cystic fibrosis clinic. With regular visits, you... » Read on

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