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Cystic Fibrosis Community - People

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CFMama

New Jersey
Married my husband Jason, 7/7/2007.  Together we have two children.  Nathan was born August 2008, and was diagnosed with Cystic Fibrosis when he was one month old.  We knew there was a possibilty he would be born with Cystic Fibrosis because we found out we were both carriers of the CF gene during the pregnancy.  He was flagged for one of the mutations on the newborn...

Greg Katz Healthy Living ProfessionalHealth Maven

Parker, Colorado
Greg Katz is the founder of Surviving Strong and Surviving Strong TV.  Surviving Strong is an oasis for hope, perseverance, and devotion to your health and healing. As a psychotherapist and “Health Sherpa” I understand how chaotic life can be with a chronic or life-threatening illness. I know from personal and professional experience that physical, emotional and spiritual...

dancing65roses

., Wisconsin
My name is Carla. I love to dance. I'm 23 with cystic fibrosis trying to learn how to live my life.

CysticGal Patient Expert

United States
This is my first time dedicating my writing to Cystic Fibrosis. I have written poems, plays and academic papers before, but I started to dry up as a writer. Once I realized that my focus on my health was taking me away from other writing projects, I realized, my health must become the focus of my writing projects! I am currently preparing for lung transplant surgery.
Communities: Cystic Fibrosis

Bitter_Angel

Liverpool, United Kingdom
IM A 23 YEAR OLD FEMALE STUDYING FOR A FOUNDATION DEGREE IN COMPUTERS. I HAVE VARIOUS MEDICAL PROBLEMS INCLUDING TRACHEAL STENOSIS FOR WHICH i HAVE A RESECTION AND RECONSTRUCTION. I HAVE HAD A LIVER TRANSPLANT. I ALSO SUFFER FROM SOME MENTAL HEALTH CONDITIONS, INC. BORDERLINE PERSONALITY DISORDER, DEPRESSION & ANXIETY AND POST TRAUMATIC DISTRESS DISORDER. AND THATS ME. ANYTHING ELSE JUST ASK.

Phoenix

United States
On April 30, 2008 our lives were changed forever! Our beautiful son Phoenix was born with Cystic Fibrosis! It's been a rollercoaster ride of ups and downs, but along the way we've learned about fighting for tomorrow! Phoenix may have Cystic fibrosis but Cystic Fibrosis will never have Phoenix!
Communities: Cystic Fibrosis

Nancy

California
Nancy Matthews is 35 year old wife and mother with cystic fibrosis (CF) and diabetes. She has been waging a battle with CF, a terminal genetic disorder, for many years. In January of 2007, Nancyâ??s body entered the end stages of CF. On December 10, 2008 she received the miracle of a double lung transplant at the University of Pittsburgh Medical Center. Nancy holds a BA in Psychology and...
Communities: Cystic Fibrosis

Amy Silcox Patient Expert

Wakefield, Massachusetts
I am a 29 year old CFer living outside of Boston. I stopped working full time right before Christmas and will be applying for SSDI soon. I live with my boyfriend and his daughter. I love to crochet and read and nothing is more satisfying than seeing something you made on someone you love.
Communities: Cystic Fibrosis, Genetics

RSBell

Medford, Oregon
Each week Robert Scott Bell empowers his listeners with healing principles that can aid in physical, emotional, mental, spiritual, economic and yes even political healing! Robert hosts the fastest two hours of healing information on radio, dealing with everyday health issues from the perspective of alternative/holistic health care. Robert Scott Bell tackles the tough issues and shows no fear...

Piper Beatty

New York, New York
I am a 27 year old CFer living it up and trying to stay healthy in New York City. I moved here in 2004 to go to law school after a lot of moving around (Colorado, Texas, Boston, Atlanta, and even a stint in England). After graduating from Columbia, I spent a couple of years working full time as a lawyer on Wall St before recently taking a temporary "retirement" to focus on my health...
Communities: Cystic Fibrosis