I've always seemed to remember a friend's response on certain things if I've told them about my CF. If its a bad response, I don't take it to heart. I have to realise that sometimes its quite a strange thing that I'm telling them and that they can't be expected not to freak out, whether its a tiny bit or more on a hitting-the-roof scale. A lot of the time, people's responses give me a bit of a chuckle, like the time when me and 3 other friends were getting ready for a party last month.
*When a friend saw my port b/c the top I was wearing was kind of low cut, i.e you could see my port*
Me: Can you notice my port? *points out port, even though there's no need* Nat: HOLY FUCK! What is that?! ...nah, you can barely notice it. Me: Right then, it's a 'hair down' kind of situation.
I love my friends. Even with blatant lies like that. Plus, you know they're good friends when they say things like that when you're insecure as hell about something. I know you could see my port but the fact that no one freaks about it anymore, is pretty great. That, and the fact that I wore my hair down, pretty much covering the port goody-ness.
Let me tell you, sometimes it's pretty handy having long hair. (Oh, and by the way Nick, this doesn't give you an excuse to get out of having your hair cut, b/c if you don't, there is a slight possibility you could end up in A+E with a 'garden sheers' incident).
I'm glad I've still got time for the Cipro to get to work - whilst I know Cipro does nothing for the cold itself, the cold seems to stop the Cipro actually working at all, at least until I'm better. Which is why I was glad that if I had to get a cold, that it was when I started Cipro, rather than just finishing it - there's always a feeling of pointless-ness when you get a cold near the end of a dose of antibiotics, as a cold usually renders them pretty useless. At least, it does for me.
Anyhoo, there was something I wanted to mention that I don't think I've mentioned properly before. Organ donation. Its always been on my mind since I found out about the whole CF = possibility of needing a tx, but I've never thought about who, out of people I know, are actually signed up. It's not the easiest thing to bring up, b/c most times organ donation is what happens when you die, to put it bluntly. People don't like thinking about the deed itself just as much as they don't spend their hours planning their own funeral, b/c one of the first things that many people link organ donation to is morbidity. What you should see it as, is an opportunity maybe to give someone the life they've never really had. Plus, surely its comforting on some level, for friends and family to know that you didn't die in vain, and that its one of the most selfless things you can possibly do in your life.
It was on my mind a lot whilst filling in the form for a provisional license. I've never been signed up as an organ donor before, as I suppose, many people with CF wonder if they've got anything worth giving. When I was 17, a letter came through the door saying 'Now you're 17, why not sign up to give blood.' My Mum told me that I probably shouldn't, given the fact that I probably loose pints via the hospital and could probably use the blood I've got. But organ donation is another matter, b/c you can't keep using something once you're floating away out of your body, or whatever happens then. The 'organ donation' section of the form is optional, obviously, but I knew I should tick something. I just don't feel right knowing there's a chance I could need a tx myself, but at the same time, refusing to be a donor should I ever choose to kick the bucket (not that I plan to obviously. I'll still be blogging away 150 years later, complaining of the taste of Cipro, as per usual.)
I thought I'd have to tick the separate boxes (You could say, for example, they could have everything bar maybe your eyes or pancreas or whatever you have an unnatural attachment to.) But then I realised that obviously they'd know not to use my lungs, or my liver (b/c of the shit-sheer amount of drugs we CFers take.) and anything else, say my kidneys, pancreas, heart and eyes, they test to make sure they're a-ok. So I ticked 'Any of my organs and tissue', although I doubt they'd want my skin/tissue either, as CFers are lucky enough to be salty as hell.
I asked a couple of friends if they were organ donors, or if they'd ticked the box when filling in their own provisional form. They said they'd left it blank. I don't understand why people are so against doing something that A, could save numerous lives and B, you wouldn't even notice b/c you're haunting the teacher that failed you out of a class in high school. Plus, they knit you back together after it all, so everyone else doesn't notice either. It's pretty much a win-win situation.
Aside from the six-foot-deep part, but that's inevitable.