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The remnants

Posted Oct 23 2012 8:52pm

This post will contain the remnants of the enormously long emotional post that I just typed and promptly discarded.

I dropped off Nathan’s stool sample Friday and got the results today. The stool came back negative for c. Diff. That means Friday is his last dose of Flagyl and Saturday he resumes the Bactrim and azithromycin.

Saturday evening he came down with a fever. As of today, it is just a cold – no more fever, no bronchitis yet. His once poor appetite is now even worse because he can’t breath and drink his pediasure in his bottle at the same time so he doesn’t want to have pediasure at all.

Today I battled with him to drink two bottles of pediasure, then during dinner he vomited globs of mucous. His nurse called in some pseudophedrine and increased his airway clearance to three times a day.

(For the record, I am so ready to get this boy a g tube. Many people want to see this boy eat and it pains many to see him not eating but nobody has to deal with the frustrations I deal with breakfast, lunch, snacks, and dinner.)

I scheduled an appointment for an evaluation at the feeding and swallowing clinic for mid November. I’ll try to hang on until then.

These are the remnants of the long winded and emotional post that is no longer.

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