Today is our last “real” day before the school season begins. Tomorrow we’re taking a long five day weekend to just relax and play!
I cannot believe that my little buddy is already old enough for preschool! Starting next week he’ll be in school, Sunday school, taking swimming lessons and starting gymnastics – he’ll be busy but the extra exercise will be perfect for his lungs! The trick will be getting him from place to place – it’s extremely difficult when both parents work, the number of evening activities in our city are extremely limited. I can only imagine how much harder it will be when he is older and possibly has siblings!
The pediatric Kalydeco study is finally moving forward – we should be able to begin within the next 4-8 weeks. I cannot even explain the relief we will feel when he is on that miracle drug! When Gavin was born, we were told this drug was something that was possibly attainable by his high school years – and just 3 1/2 years later, in his preschool years – he will be starting an amazing medication. We feel beyond blessed.
And now – a small photo dump from my iphone, from some of our summer adventures. We’re ready for the brisk air of fall – but not quite ready to say goodbye to the summer fun – bittersweet!