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Quick Update & Photo Dump

Posted Aug 29 2012 1:48pm

Today is our last “real” day before the school season begins. Tomorrow we’re taking  a long five day weekend to just relax and play!

I cannot believe that my little buddy is already old enough for preschool! Starting next week he’ll be in school, Sunday school, taking swimming lessons and starting gymnastics – he’ll be busy but the extra exercise will be perfect for his lungs! The trick will be getting him from place to place – it’s extremely difficult when both parents work, the number of evening activities in our city are extremely limited. I can only imagine how much harder it will be when he is older and possibly has siblings!

The pediatric Kalydeco study is finally moving forward – we should be able to begin within the next 4-8 weeks. I cannot even explain the relief we will feel when he is on that miracle drug! When Gavin was born, we were told this drug was something that was possibly attainable by his high school years – and just 3 1/2 years later, in his preschool years – he will be starting an amazing medication. We feel beyond blessed.

And now – a small photo dump from my iphone, from some of our summer adventures. We’re ready for the brisk air of fall – but not quite ready to say goodbye to the summer fun – bittersweet!

IMG_3710 IMG_3716 IMG_3722 IMG_3727 IMG_3735 IMG_3737 IMG_3750 IMG_3765 IMG_3767 IMG_3787 IMG_3791 IMG_3795 IMG_3808 IMG_3847 IMG_3852 IMG_3853 IMG_3868 IMG_3869 IMG_3884 IMG_3890 IMG_3901 IMG_3935 IMG_3937 IMG_3939 IMG_3961 IMG_3964 IMG_3997 IMG_3991 IMG_3972 IMG_4010 IMG_4014 IMG_4015 IMG_4019


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