I didnt know this at the time but.....the doctor took my mum into a room and told her that they couldnt get the gases down and that there was nothing more they could do for me. She was given 2 options: to put me on machines until i passed away or they could just make me comfortable. Mum was in shock as she didnt realise it was that serious because we managed to get the gases down before. She asked them if they had rang Harefield as i was on the transplant list but they said no, so she made them ring and Harefield accepted me. My mum called Danny, Scott and daddy up to the hospital to see me before i went in the ambulance. I was blue-lighted to Harefield with a ressertaion team in the back with me and mum and scott had to meet us there.
At Harefield I was attached to more bloody tubes and wires and was put on a machine called the Novalung. I was laughing when I got to Harefield because of all the stress and being so ill, i had wee'd myself in the ambulance which i found amazing - i find humour in the strangest things!! Anyway, this machine is 2 thick tubes; one in each groin, and it cleans your blood of the carbon dioxide. I dont remember having it put in but it was sore and i wasnt able to move my legs. They had to be straight and obviously i had to just lay on my back which was highly uncomfortable. I was on this for 2 weeks until I suddenly struggled more to breathe as my lungs deteriorated even more.
This is when I was put on a different machine called the Ecmo. This machine does the same as the Novalung but it also adds oxygen to the blood aswell. One of the tubes was take out my groin and put into my neck. This procedure should take under an hour but for me it took 9 hours. Arriving at Harefield The Novalung The Ecmo tube in my neck
It took 9 hours because they had lots of problems. They couldnt get the tube into my neck and they were shoving it in and both men tried and were sweating and struggling. They eventually got it in and turned on the machine but it said 'no flow' so they had to cut the tubes and flush it with heprin to get rid of blood clotting in the tube....this happened 3 times. I also had to be bagged twice because my sats dropped to 30 and everything was blue. Then when they took the tube out my groin, they had to press hard on the hole to stop the blood but then realised the dressing pack had something missing. They had to get another pack and clamp and he was pushing really hard until it was sorted. So this event took all night and mum eventually left at 9am traumatised....oh forgot to mention that i was AWAKE through it all with no painkillers as it was too risky to sedate or ventilate me.
I was on the ecmo for a week and a half until I got the call for new lungs. During these 3 and half weeks at Harefield i had 2 false calls for lungs; the first were too big, the second were too damaged and the third were perfect. It was Saturday 20th August at 6am when the co-ordinator came in to say that they were going to look at some lungs. We then had to wait until 11am when they confirmed that the lungs were great and i was going to have a transplant. Mum screamed with joy and Scott was so pleased. We rang dad and he was running the pub and he told me they all cheered and clapped and we managed to get hold of my bro too. I remember feeling terrified and they put me to sleep in my room as i had too much equipment to move. Then i went to sleepy night nights xx
Part 2: After the transplant is coming in the next few days!!!
x Lots of love x