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Cystic Life

Posted Jan 10 2010 9:10pm
I have been awaiting the launch of Cystic Life for quite some time. I love dreams that come true. Cystic Life was dreamed up by Ronnie and his now fiance Mandi.

What is Cystic Life? CysticLife.org is a social networking site much life facebook, myspace, and twitter. You can even link up to these social networking sites from Cystic Life. What makes Cystic Life different than these other social networking sites is that it was built especially for the Cystic Fibrosis community.

The website was expected to go live today so I checked first thing in the morning and alas! Cystic Life was not just a concept anymore. I created an account and am slowly working on creating a profile. My first impression of Cystic Life? It is a well designed social networking site organized neatly so members can connect with others in the Cystic Fibrosis community, share stories, ask questions, and interact.

Essentially it is still a blank canvas that needs the members of the CF community to help create the masterpiece. So do you have CF? Are you a CF parent, sister, brother, son, daughter, friend? Head on over the CysticLife.org and check it out for yourself. Help contribute to the masterpiece. Create an account and expand your CF community!


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