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CF Awareness Month: CF Resources

Posted May 17 2012 12:00am
CF Community Resources

Blooming Rose Foundation- The Blooming Rose Foundation's mission is to provide social services, positive contacts and hope to families immediately after diagnosis.

 Boomer Esiason Foundation- The Boomer Esiason Foundation is a dynamic partnership of leaders in the medical and business communities joining with volunteers to heighten awareness, education and the quality of life for those affected by CF.

 Breathe 4 Tomorrow- Breathe 4 Tomorrow Foundation is a non-profit organization dedicated to helping families and individuals in need due to Cystic Fibrosis.

 Cystic Fibrosis Foundation- The Cystic Fibrosis Foundation (CFF) provides information about living with CF, treatments and research. The CFF assures the development of the means to cure and to control CF and improve patients' quality of life.

 Cystic Fibrosis Lifestyle Foundation- CFLF provides avenues toward healthy and active lifestyles through recreation, thereby educating adolescents and young adults with CF on psychological, social and emotional connections between lifestyle and health.

Cystic Fibrosis Research, Inc.- The Cystic Fibrosis Research, Inc. is a community of families, professionals and volunteers committed to funding cystic fibrosis research, providing educational and personal support and improving the quality of life those with CF and their families.

 Cystic Fibrosis Worldwide- Cystic Fibrosis Worldwide (CFWW) is dedicated to improving quality of life and life expectancy for persons living with cystic fibrosis globally. CF Podcast- Jerry Cahill (50+) shares stories on how he, and others with cystic fibrosis, are LIVING BREATHING SUCCEEDING with CF. The podcasts consist of interviews with teens and adults with CF, parents and caregivers, where they discuss such topics as exercise, nutrition, careers, marriage, starting a family, lung transplants, and CFRD.

 Moganko for CF Awareness- A website great for kids (and adults) full of fun videos that teach people with cystic fibrosis the importance of taking care of themselves every day so they can stay healthy. Parenting Children With Health Issues- Free audio, articles and other resources to help parents discover how to raise happy, healthier kids. Based on the popular Love and Logic ® parenting program created by Jim Fay and Foster Cline, MD. R

Rock CF Foundation- The Rock CF Foundation utilizes the arts, entertainment, fashion and fitness to support research initiatives and heighten public awareness in the fight against cystic fibrosis. Tips for CF Parents- Provides tips and resources for parents of children with CF. Lisa C. Greene is the mom of two kids with CF, a parent coach and co- author with Foster Cline MD of the award-winning Parenting Children with Health Issues. USACFA- United States Adult Cystic Fibrosis Association Inc. (

(USACFA), is a non-profit organization, run by 12 volunteer Directors who all have CF. Since 1990, USACFA has published a quarterly newsletter, CF Roundtable, offering hope, support, and news in the world of cystic fibrosis.
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