We got a blizzard this weekend!!!Amazing!We haven’t had this much snow in years and even if you added up the snow fall from the last 3 years it wouldn’t amount to what we got this weekend.So awesome!!
This is also the first snowfall of any amount that we have gotten since my lungs took a shit.So needless to say I was not fully prepared for what snow above 12” can do to a person with limited lung function.I learned, the hard way…
Saturday night my mom and I took a stroll out and about in L-town.It was still snowing and there was about a foot on the ground already.Most of the roads had been plowed somewhat.So we made some snow angels and walked up to the corner restaurant to get desert, and so I could take a break.I was so ridiculously winded I wanted to cry.My head was throbbing and I was exhausted.We literally had been outside maybe 15 minutes.We rested and after about 10 minutes of deep breathing my headache went away.So we ate desert (cheesecake yum) and headed home.We had a lot of fun don’t get my wrong but holy hell!I was hurting!Between the headache and the lung pain I have been having it was 50/50 on enjoyment lol.
Today was the same thing.I went to my brothers to play with my nephew and so we could go sledding.I had so much fun but I wanted to keel over after 10 minutes outside.I pushed myself on though because this might and will most likely be the last snow storm I see while down here in PA.So I wanted to enjoy it with my nephew.And I did…then I came home and died LOL.
But this all got me thinking about a caringbridge journal update I read on a friend of mine.She talked about lung pain since she is on pain killers for hers.She just did transplant evaluation so she is a little sicker than I am.Anyway, she mentioned how common it is among end stage and almost end stage CFers.Does what I am experiencing non stop qualify as this?
I’ll explain what I feel as best as I can.
My upper front lobes ache.My upper rear lobes ache.The only time they feel ok is when I take Motrin, but I hate living on pills (besides my normal ones) and really don’t want to make Motrin a daily pill.I will if I have to but I really don’t want to.
No I have never mentioned the pain to my doctor because when they ask if I am in pain I say no.I have become so used to it that I never think to tell them.It’s totally my fault and I should.
I guess this is just another thing I get to add to my CF list huh?