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Alex: A Passion for Life

Posted Oct 16 2009 10:04pm

I hope you all watched this last night, if not you can watch it herehttp://www.channel4.com/programmes/alex-a-passion-for-life/4od

I think it's good because it catches what it is like to live with CF without been solely based on CF, in my opinion these type of programmes can try to make it appear as bad as possible, look like you are just having a big moan and infact not give a realistic view of CF as it gives the impression the persons whole life is about CF. Infact Alex does the opposite and tries to get on with everything and ignores how he is feeling, ultimately making him run down and end up in hospital. I sat there wondering where the heck he finds the energy to do all these things!

I preferred this one to the last one as it did show more of the CF side to his life, just little things like him coughing his guts up, his port line bleeding back, doing his nebs etc. We all know people with CF take alot of tablets and have to do physio, I don't think it gives the right idea of what CF is. We don't just do physio twice a day, take some tablets and everything is alright. Those bits aren't the difficult parts, ok I lie.... its difficult to find the will to do them and they can be time consuming! The difficult parts are the pain it causes, the embarrassment, the tiredness it brings (as can clearly be seen in Alexs face when he is sat in the car before he does the show), the allergies and side-effects, the discrimination and all the stupid little things like getting hold of the medication and things not working properly! Also knowing its never going to go away isn't the nicest feeling to have.

It also showed typical CF behaviour for example: mum having a go at you for not doing your treatments, telling people you feel 'great!' when they ask even though you feel like death and glossing over things like they are nothing when infact they would freak out your average person. I think everyone with CF can relate to these situations.

I must admit I grit my teeth when the woman said people should aspire to be like him, what exactly does that mean?! Alex is doing what he loves and in my opinion is making himself very ill in the process. If she means people should aspire to do what they love, people do that all the time but it's not that big a deal when you are fit and healthy and able to do it, it should be praised but tends not to be unless there is a giant obstacle in your way. I feel like the TV programme is trying to make him out to be someone to admire and by doing this they are driving him to do more and in the process he gets poorlier, which lets admit makes better TV.....

I hope that Alex slows down, he needs to find the balance to do what he loves but keep on top of his health. At the moment I don't think he is managing this very well, I think all CF teenagers go through this stage, however Alex is taking it the extremes!
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