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A rough weekend in the world of Lung Disease

Posted Oct 07 2009 4:38pm
This weekend was a rough one in the CF world. We lost 3 people to this disease.

Ava, Neeshy and Mason – Breathe Easy now.

Ava was only 15 years old and had received her double lung transplant last week, only to pass on Sunday morning from complications.

Neeshy was young as well. I was not aware she was sick until she passed…so sad. She had just begun the transplant evaluation process.

Mason I never got to talk to but Q was talking about him Saturday night in chat and then Sunday he passed. If I remember correctly Mason had PH and a lung transplant and was waiting being listed again because of complications. He was in his early 20s.

It saddens me to read about these deaths. It frightens me that I might have to say goodbye to more friends at some point. When Jenn passed it hurt like hell. I was not as close to her as some but she was my first real CF death. I had lost other people I chatted with once or twice but nothing to the extent of talking almost every night in chat and exchanging text messages, like I did with Jenn. I think about her often and find my self always going to click on her name on Facebook for a cause or such to invite her to.

I worry about all my CF friends (and my non-CF bibliophile friend). Those that are post transplant, those that are waiting new lungs, those that are soon to be listed, those getting close to evaluation and those that are “healthy” in the CF world.

I never worried about CF deaths before. I had never known anyone else with it. There was a risk I was taking by joining the forums and befriending so many people, but I did it anyway. I would never trade what I have for anything in this world. The friendships I have made with some of my fellow cystics are remarkable, and I cherish each of them. Some of these people I may never get to meet in person but they have touched my life in ways that some of my RL friends never will.

I love each and every one of you. Losing a cystic sucks but it also reminds us that what we have with each other is so very precious and we should treasure it everyday – CF or not.
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