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A chance to be a part of Saturday!

Posted Oct 04 2009 11:13pm
When Phoenix was diagnosed with CF, I wasn't sure where to go from that moment on. I knew I couldn't take things sitting down. I could do all his meds and follow a strict schedule but that wasn't enough. I was in a helpless situation and needed to find a way to do something.
That is where the idea for the Poker Run came from. It was a way for me to fight this disease that I had no control over. Throughout the last year we have met some truly amazing people, some have helped us see CF in a different light. But throughout all of the learning and growing we have also experienced the harsh realities of this disease.
So on July 25 when we all join together to continue our fight for a cure, we are going to remember those that fought the fight and lighting a candle in their memory.
This is where you can be a part. If you have a family member or friend that you would like for us to honor please e-mail me your information at
If you have a picture you would like us to use please include that also and we will be sure to place there photo beside their candle.
We will continue this tradition every year until there is a cure, and when that one year comes and there is no need to fight for a cure we will celebrate. And for the first time we will be able to get all our children together, in the same place, under the same roof, and take a deep breath. And then try to remember what it was we used to have to worry about, because CF will stand for Cure Found!
For more information on the poker run visit: (We already have big plans in the works for next year! Remember all proceeds go to the Cystic Fibrosis Foundation. )

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