Health knowledge made personal

Crystal M.

Round Lake Beach, Illinois
My name is Crystal and I am a stay at home mom to 3 wonderful children, my youngest and my daughter Eva was born with a rare syndrome called CHARGE Syndrome. She is deaf/blind, had an ASD and PDA of the heart, Colubomas of the eyes, one kidney, facial paralysis, feeding and growth issues. She is... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
Our weekend.... by Crystal M. Posted in: Blog Posts in Children's Health Well Saturday we went and got Bailey's new glasses and I have to say he is pretty cute with them on. He is also showing us how great he is going to take care of them, he c ... Read on »
Appointment updates by Crystal M. Posted in: Blog Posts in Children's Health Wednesday Bailey had his eye exam and we were right he failed, but nothing horrible. He needs glasses to watch tv, see the boards at school, see the clock across the room, ... Read on »
My sister by Crystal M. Posted in: Blog Posts in Children's Health Bailey wrote this at school about his sister.... My Sister The great thing about my sister is she is fun. She is fun because she plays with me by jum ... Read on »
Got some news.... by Crystal M. Posted in: Blog Posts in Children's Health Last week Eva's audiologist called and told us it looks very promising with her getting a Cochlear Implant. The ENT and the audiologist had a meeting and the ENT thinks sh ... Read on »
3 days of doctors.... by Crystal M. Posted in: Blog Posts in Children's Health for me and Alex! I had my appointment on monday to talk about the trial drug I will be going on. I am not 100% sure on the name and its something I could never spell ... Read on »
Busy but nice few days!! by Crystal M. Posted in: Blog Posts in Children's Health Last Thursday I went to the airport and picked up my wondering friend Kim Clayton and spent 2 1/2 days with her. It was so great to have someone to talk to and not feel li ... Read on »
News and just some stuff by Crystal M. Posted in: Blog Posts in Children's Health Ok where to start... as you know the cancer is still here and we will be starting a new treatment. I am going on a trial drug where they put the drug right into the tumor. ... Read on »
Scans by Crystal M. Posted in: Blog Posts in Children's Health Yesterday Alex had an MRI on his intestines and he did a great job. When he was in the hospital he couldnt keep the contrast down and got very upset. Then when we came in ... Read on »
Cousins and Pumpkins by Crystal M. Posted in: Blog Posts in Children's Health Friday night we left for Wisconsin to watch my neice and nephew because my brother and his wife went to Jamaica for a week. We even skyped them while we were there so they ... Read on »
Help Crystal... by Crystal M. Posted in: Blog Posts in Children's Health My friend's husband made a website to help our family get donations to help us pay off our medical bills. the paypal widget on the side was to help as well but for some re ... Read on »
It's been awhile..... by Crystal M. Posted in: Blog Posts in Children's Health since I last updated, sorry about that. When I am in the hospital I am pretty much out of it and dont know whats really going on. People have talked to me and I dont remem ... Read on »
Gift from God by Crystal M. Posted in: Blog Posts in Children's Health Yestery day while we drove here to the hospital it as raining, I could see the sun trying to peek through the clouds. I Told Dan maybe I will get a rainbows, he was not su ... Read on »
Day 2 in the hospital by Crystal M. Posted in: Blog Posts in Children's Health I have had 3 rounds since I got in yesterday and getting ready for round 4, I just got a cathater placed in and I hate the feeling of having to pee but nothing coming out. ... Read on »
Home for a week by Crystal M. Posted in: Blog Posts in Children's Health I have been home for a week now and finally feeling somewhat better, I am about 75% normal. I have a smaller appitite but its slowly getting better and going to the bathro ... Read on »
last day for this week.... by Crystal M. Posted in: Blog Posts in Children's Health So I have been at Lutheran General for a week now and I feel alone and depressed. Dan has come pretty much everyday (someone has to deal with the kids), my friend Nikki an ... Read on »
Tests results and treatments by Crystal M. Posted in: Blog Posts in Children's Health So last week I had my MRI and my PET scan, my MRI is negitive for anything and my PET scan showed the cancer is just where we already knew it was, in my right leg. BUT its ... Read on »
Don't know what to title this one.... by Crystal M. Posted in: Blog Posts in Children's Health So for awhile now I have been carrying around some news and I don't know how to put it. I wanted my family to know as well before I posted it here and I believe pretty muc ... Read on »
Joshua Kurby's 3rd annual 5K run for CHARGE by Crystal M. Posted in: Blog Posts in Children's Health Saturday we went to the 5K run for CHARGE in memory of Joshua Kurby, it was great seeing other CHARGE families there and hope we all can get together more offen. We did no ... Read on »
playing catch up... by Crystal M. Posted in: Blog Posts in Children's Health Saturday we went to a wedding for Dan's cousin Sylivia, it was great seeing her and her family again. Its been awhile since we all got together. I have never seen 2 people ... Read on »
Orlando Vacation by Crystal M. Posted in: Blog Posts in Children's Health Last sunday we jumped on a plane and went to Florida, our flight was delayed by 5 hours but the airline was AWESOME at making sure we were all taken care of. When ... Read on »