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Understanding Life After Surgery

Posted Sep 07 2011 7:02pm
My son is 12 years old and has suffered from UC from the age of 5 yrs. We went through all the mediactions orally, Remicade, and had the colon and rectum removed in March of this year. On June 15 2011 we had the take down and was connected to the J-Pouch. He is not happy at all now. His only relief is that he doesn't suffer from the stomache pain. He's going to the bathroom even more now than before the surgery. He takes immodium, and Lomotil and still goes from 8 - 12 times a day. Not resting well at night because sometimes he is getting up 2, 3, 4 times a night to go to the bathroom. He is always complaining about butt burn and itching. Never goes anywhere without itching creme and desitin or senseacare cream. Hasn't found anything to help as of yet. Any informative information from all would be very appreciated. Kinda going this in the dark/blind as some would say.
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