My name is Cindy Cole and I am a stay at home mom of 2 sets of boy/ girl twins ages 3.5 and 6.5. 3 out of my 4 children have chiari malformation and 2 of the 3 have had a decompression. My 3rd chiari child is being followed with meds at this point. I also have 3 children with craniosynostosis.