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ckmiletti Patient Expert

Mound, Minnesota
Hi from Minnesota. I have been living with PIDD for many years. I started treatment for CVID in 2004. I currently receive my IgG therapy by self-infusing, or using the Sub Q (subcutaneous) method. I have been feeling so much better since receiving IgG therapy. I feel like I have my life back,... Full Bio
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This week from the CDC – status of H1N1 by ckmiletti Patient Expert Posted in: Blog Posts in Lupus CDC H1N1 Flu Website Situation Update, November 13, 2009? Key Flu Indicators Each week CDC analyzes information about influenza disease activity in the United States a ... Read on »
Swine Flu becomes National Emergency by ckmiletti Patient Expert Posted in: Blog Posts in Lupus October 24, 2009 Obama Declares Swine Flu a National Emergency By THE ASSOCIATED PRESS Filed at 11:23 a.m. ET WASHINGTON (AP) — President Barack Obama has declar ... Read on »
Center for Medicare and Medicaid Services info on H1N1 by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Medicaid and the Children’s Health Insurance Program (CHIP) Coverage of the 2009 H1N1Flu Vaccine and Treatment The 2009 H1N1 flu (sometimes referred to as “swine flu”) is ... Read on »
Where are the flu shots right now? by ckmiletti Patient Expert Posted in: Blog Posts in Lupus This is the best site for all you ever wanted to know about the Swine flu.  www.Flu.gov There is a map with a drop down menu by state so that you can find out IF the vacc ... Read on »
PIDD Patients and Swine Flu Shots by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Swine Flu Shots Safe for People With Weak Immune Systems: Experts Another study outlines risks of catching H1N1 from various routes HealthDay Friday, September 18, 2 ... Read on »
Characteristics of Swine Flu from the Washington Post by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Swine Flu Characteristics Becoming More Evident Links to Pneumonia, Rapid Effects on Young Noted By Rob Stein Washington Post Staff Writer Saturday, October 17, 2 ... Read on »
FLU VIEW by ckmiletti Patient Expert Posted in: Blog Posts in Lupus As you may have heard, the H1N1 Vaccine is running behind schedule right now.   Don’t forget, as PIDD patients, we should NOT take the live FluMist vaccine.   We can only ha ... Read on »
NEWS ABOUT PIDD RESEARCH by ckmiletti Patient Expert Posted in: Blog Posts in Lupus This is what Dr. Hans Ochs is working on at Seattle Children’s Hospital. He is one of the top Dr’s who works on our behalf. Seattle Children’s researcher Dr. Ochs ... Read on »
PIDD and Swine Flu (H1N1) Recommendations from the IDF by ckmiletti Patient Expert Posted in: Blog Posts in Lupus The IDF has recommended the following for patients with Primary Immune Deficiency Disease who are concerned about the H1N1 Flu. Please read carefully and take note:    ... Read on »
Swine Flu news from Harvard Health by ckmiletti Patient Expert 1 Comment Posted in: Blog Posts in Lupus Many of us have already been hit by the H1N1 virus, and many more of us are wondering what the symptoms are, the duration, the recommended protocol. This article from Har ... Read on »
H1N1 VACCINE GUIDELINES by ckmiletti Patient Expert Posted in: Blog Posts in Lupus This is posted on the IDF Web-site and originates from the AAAAI.   This is information for PIDD patients and the Swine Flu vaccine: September 17, 2009 Flu Vaccine ... Read on »
Celiac info from Harvard Newsletter by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Since may of us have any number of autoimmune disorders, and quite often Celiac disease is one of them, I thought I would post this Newsletter I received from Harvard.  I al ... Read on »
‘SWINE’ FLU VACCINES ALMOST READY by ckmiletti Patient Expert Posted in: Blog Posts in Lupus WASHINGTON, Sept. 15 /PRNewswire-USNewswire/ — The U.S. Food and Drug Administration announced today that it has approved four vaccines against the 2009 H1N1 influenza virus ... Read on »
Cancer and PIDD by ckmiletti Patient Expert Posted in: Blog Posts in Lupus I guess you could say that it’s never a good thing when your Dr. calls you at home over Labor Day week-end, and begins his sentence with ‘Carol, I’m afraid I’ve got really b ... Read on »
How Health Insurance Reform Will Help America’s Older and Senior Women? by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Very timely information for women.   Read ASAP. This is from our Department of Health and Human Services I hope it helps you in your decisions about health care today. ... Read on »
Who will get the H1N1 Vaccine First? by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Immunization Practices (ACIP) met today to vote on recommendations that will be approved by the Centers for Disease Control and Prevention (CDC) on which populations should ... Read on »
Who should get the Swine Flu Vaccine? The latest news from the CDC. by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Novel H1N1 Vaccination Recommendations With the new H1N1 virus continuing to cause illness, hospitalizations and deaths in the US during the normally flu-free summer mont ... Read on »
VERY IMPORTANT INFO ON HEALTH CARE REFORM AND ACCESS TO PLASMA THERAPIES by ckmiletti Patient Expert Posted in: Blog Posts in Lupus This is from the CSL Behring Advocacy Newsletter: Health Care Reform - Will Plasma and Recombinant Therapies be Protected? CSL Behring Public Affairs CSL Behring is ... Read on »
Now we know where to go when we get sick! by ckmiletti Patient Expert Posted in: Blog Posts in Lupus The ‘Best Hospitals’ for 2009 Hospitals are listed below by total points. Here are the 21 hospitals that made the magazine’s honor roll (two are tied for 10th place): ... Read on »
Milwaukee seems to be at the center of understanding the Swine Flu by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Milwaukee cases to be key in developing swine flu vaccine By Mark Johnson of the Journal Sentinel Posted: July 25, 2009 To better understand the enemy they will fac ... Read on »