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ckmiletti Patient Expert

Mound, Minnesota
Hi from Minnesota. I have been living with PIDD for many years. I started treatment for CVID in 2004. I currently receive my IgG therapy by self-infusing, or using the Sub Q (subcutaneous) method. I have been feeling so much better since receiving IgG therapy. I feel like I have my life back,... Full Bio
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The latest list of what drugs may not be safe for us from the NIH. by ckmiletti Patient Expert Posted in: Blog Posts in Lupus The table below lists the names of products and potential signals of serious risks/new safety information that were identified for these products during the period April ... Read on »
More info on Vitamin D, Autoimmune Diseases and Cancer from Reuters by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Vit D linked to cancer, autoimmune disease genes Mon, Aug 23 17:00 PM EDT By Kate Kelland LONDON (Reuters) - Scientis ts have found that vitamin D influences ... Read on »
OCTAPHARMA WITHDRAWN!!! by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Notification - ENURGENT: Voluntary Market Withdrawal       Initiated by :  Octapharma USA Inc.       Event Id :  143       Event Date :  08-20-2010       Therapy O ... Read on »
Interesting article about our immune systems and Parkinson’s by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Sunday, August 15, 2010 By Julie Steenhuysen CHICAGO (Reuters) - A gene linked with the immune system may play a role in developing Parkinson’s disease, rese ... Read on »
PROBIOTICS – To Take or Not to Take? by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Is it good bacteria? Better check exactly what’s in the bottle Professor Gregor Reid at the University of Western Ontario. A growing number of people have turned ... Read on »
CDC FINDS A NEW FLU- the H3N2 FLU- stay tuned……….. by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Robert Roos News Editor Aug 5, 2010 (CIDRAP News) – The Centers for Disease Control and Prevention (CDC) is urging healthcare providers to be alert for influenza cas ... Read on »
Look for changes in your health care starting next month by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Wave of health reform provisions coming next month By TOM MURPHY (AP) Health care reform hits another milestone next month, with new provisions that include a cove ... Read on »
Are you the cared for, or the caregiver- or BOTH by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Advice from Harvard Health about Caregiving Survival tips for current and future caregivers One day you may find that someone you care about — a spouse, parent, re ... Read on »
IDF Teen Escape- at the Mall of America by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Teens Escaped the weekend of July 16 to Bloomington, MN where they enjoyed a fun weekend with friends while learning about their Primary Immune Deficiency Diseases ... Read on »
From a Doctor to Patients with Chronic Illness by ckmiletti Patient Expert Posted in: Blog Posts in Lupus I hope you find this blog as interesting as I have. This particular ‘musing’ is of interest to PIDD patients. I left Dr Rob’s info in here just in case you would l ... Read on »
Please make sure you get a Whooping Cough Booster by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Karla Gale, MS July 9, 2010 — The Tdap vaccine — a tetanus, reduced-dose diphtheria, and acellular pertussis booster — effectively protected adolescents duri ... Read on »
What Hospital do we want to be in when we get sick? See the top Hospitals from a report just... by ckmiletti Patient Expert Posted in: Blog Posts in Lupus By Avery Comarow, U.S. News & World Report Find more It’s no secret that all hospitals are not equal. The special quality shared by the 152 that made it ... Read on »
Dr Recommends Booster for PIDD patients at recent IDF Meeting – here is what the CDC has to... by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Hi, I’m Stacey Martin. I’d like to talk about Tdap vaccine recommendations and the opportunity we have to protect patients from pertussis. Despite the use of ... Read on »
From Harvard Health- 6 Ways to Help Your Immune System by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Six ways you can help your immune system If you didn’t have a functioning immune system, simply brushing your teeth would introduce enough harmful bacteria into your b ... Read on »
PIDD and Virus News from the Allergy and Asthma Association by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Respiratory virus infections are common in patients with hypogammaglobulinemia Patients with primary hypogammaglobulinemia suffer from recurrent bacterial infections. ... Read on »
IDF Meeting in Tampa Bay by ckmiletti Patient Expert Posted in: Blog Posts in Lupus I’m wondering who is going to attend this, as I’m trying to decide whether or not to come out for it. July 17, 2010 9:00 am - 2:00 pm IDF Patient Education Mee ... Read on »
Women and Vitamins from Harvard Health by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Advice to women about supplements—use selectively              Once we believed it was possible to compensate for dietary deficiencies by popping a multivitamin ... Read on »
Do you want to learn more about WHY you need Vitamin D in your daily diet? What can it do for... by ckmiletti Patient Expert Posted in: Blog Posts in Lupus Practicing physician and pioneer in functional medicine Posted: May 22, 2010 08:00 AM What vitamin may we need in amounts up to 25 times higher than the gov ... Read on »
IDF MEETING IN KNOXVILLE by ckmiletti Patient Expert Posted in: Blog Posts in Lupus This meeting is an Outreach Meeting for the IDF sponsored by CSL. If you have not had a chance to meet other PIDD patients, and you live in this area- please attend. ... Read on »
Changes from insurance companies are already beginning to look better by ckmiletti Patient Expert Posted in: Blog Posts in Lupus WellPoint, UnitedHealth Group announce changes in their use of rescission Dan Bowman Under pressure from Congress and growing criticism from providers an ... Read on »