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ci4me2007 Patient Expert

From Oslo, Norway, born in 1972. Profound hearing loss at the age of 1, probably due to ototoxic medicine or scarlac fever. Now waits for CI-operation running on the third year. Write about the Norwegian health-system, myself and my mental and physical status during the long wait. Expected to be... Full Bio
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Advanced Bionics test program – AGC (Automatic Gain Control) by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness My fellow CI-blogger Jeff “Metalhead” just published very interesting information about one of Advanced Bionics latest test-programs. It’s called AGC (Automatic Gain ... Read on »
Promising results for tinnitus treatment by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness With the use of magnets, in so called “repetitive transcranial magnetic stimulation” (rTMS), a trial run has showed promising results in the treatment of tinnitus. Re ... Read on »
What to think? by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Since my last post life has grabbed hold of me This is a good thing. I’m changing my life in the direction I have always wished for. I consider myself extremely lucky ... Read on »
Christmas 2008 - 36 months in waiting by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness As the end of 2008 nears, I have this summary for the year. Still waiting for the CI. Still have no date. Still on the brink of deafness. Still struggling in everyday ... Read on »
an allegory of the last string of hearing… by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Recently I have tried to explain to people close to me how it really feels to loose the hearing the way I do. And I have become quite inventive and in the light of my newf ... Read on »
Informational animated flick about hearing hard in worklife by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness May give people some insight into what challenges users of hearing aids faces every day…. It is in norwegian, but I still think it gives englishspeakers an idea… ... Read on »
This was supposed to be me :-) by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Yesterday I discovered this interesting book while shopping on Amazon.com: “Rebuilt” written by Michael Chorost. It was a weird feeling as I discovered more and more ab ... Read on »
All senses alert by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Lately I’ve been plagued with tension-headaches and extreme fatigue. The headaches I cannot pin down to one cause, same goes for the fatigue-episodes. It seems like all my ... Read on »
CI-nagging round 2 (actually it’s more like round 5 or 6) by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness OK, the health care bureaucracy in Norway is fucked up in many ways. I have to live with that, and I have to deal with it. SO, the premier hospital in Norway, Rikshospi ... Read on »
The importance of the eyesight when deaf by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Three days ago I tried contactlenses for the very first time. I’ve been using glasses since the age of 13, so this was a new experience… Because of my reduced hearing I re ... Read on »
Pre CI-op. seminar by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness I spent 3 days last week attending a course about CI and how to deal with the long waiting. First of all I must say it was a good seminar. Especially since I met a woma ... Read on »
A lot to digest by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Just came back from a 3-day course about CI for people who are waiting for CI-operation. For now I will just note some points that I’ll explore further at a later time. ... Read on »
What is Cochlear Implant? The video answer by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Curious about what a Cochlear Implant really is and how it works? Well, here’s the answer!  Read on »
Pre-sleep-phenomenon update by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness I have received suggestions about a previous article “pre-sleep-phenomenon” that it could be myoclonic jerks, or more commonly known as hypnic jerks. Wikipedias Definit ... Read on »
The importance of the eyesight when deaf part II - the conclusion by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Getting used to contact lenses, and with the final adjustments just around the corner, I learned this: My eyesight is as important to communicate verbally as my residua ... Read on »
CI nagging round 3 by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness After new rounds with both Rikshospitalet and Haukeland I have reached a decision. Rikshospitalet asked if I was willing to be operated at Haukeland within 6 - 12 months. ... Read on »
Midlife – on new paths by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness A pilgrim walking alone Memory of a time lost Seeking purpose, connection From here on A lot said and done Not all undone Lack of time lack of sight Thin ... Read on »
Status update by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Tinnitus is still there, disturbing concentration and sleep. The left ear seems to want to join the debate as to wether the hair-cells in my cochlears are about to wither ... Read on »
The Doors - When the music’s over by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Recently I have stopped listening to music on a regular basis. This saddens me deeply, and I feel it will be fitting to take a moment to mark the transition to real deafne ... Read on »
Battling tinnitus, headaches and fatigue by ci4me2007 Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness While living my life, with the absence of the working life strains, I still have to deal with stuff that is quite heavy. First out is the tinnitus. Coming on strong in ... Read on »