No one knows like I do how tough it can periodically be for even the best doctors to form a proper diagnosis. Humans, and particularly their immune systems, are innately and highly complex beings. Toss in environment, diet, genetics, evolution, and more — and you’re dealing with numerous unknowns.
With Crohn’s disease, I was not fully diagnosed until 2+ years into the madness. Similarly, as an ANCA-negative Wegener’s sufferer, it took over 6 months of intense treatment to get a proper diagnosis. (And even still there are times when I’m convinced that I don’t have Wegener’s...that could be the optimism talking though.)
Perhaps this is why I was so intrigued by the following Q&A from the Mayo Clinic’s Medical Edge column:
DEAR MAYO CLINIC: I've read that vasculitis is a rare disease, but I'm beginning to wonder if it is rare or if doctors just don't understand it. My husband has this condition, but the routine blood tests performed come back negative. How can we know for sure if vasculitis is the correct diagnosis? If it is vasculitis, what are his treatment options?