As a longtime fan of PatientsLikeMe *, I was ecstatic to see an email from them last week stating that Crohn’s disease is now a part of their patient-community. Upon further investigation, it looks like they opened the gates to patients with any condition on April 11 — the site was previously only available to 22 types of patients (including ALS, Parkinson’s disease, HIV, depression, epilepsy, fibromyalgia, multiple sclerosis and organ transplants).
I’ve been playing a bit on the site, particularly this weekend, and am truly impressed by not only the community, but the tools available for real-life guidance in the day-to-day life of a patient. Subscribing to other patients with similar profiles is super intriguing also. But the amazing thing that you must see right now is this data visualization of patients viewing other patients: patientslikeme.com/elapsed_profile_views (crazy, right?)
More to come as I add to my profile and meet new members. Really incredible stuff. Well done PLM!
*Wondering what PatientsLikeMe actually is? They are the “leading online community for people with life-changing conditions. Patients embrace the open sharing of personal health data because they believe that information can change the course of their disease.”