Health knowledge made personal
|
Welcome to another round of ICLW -- a quick synopsis -- this blog follows my journey to find a diagnosis for my pelvic pain. After hearing a pretty resounding "we can't help you" in my hometown (after a negative laparoscopy for endometriosis or adhesions, a trial of Lupron, and too many other tests to count), I hit the computer, did some research and thought this was a nerve problem. I've been pretty much around the country and now it's looking like I may have genitofemoral neuralgia. Pretty rare. The most difficult part is that I'm still not definitively diagnosed, still have no treatment plan. But, I have *I think* finally found doctors at Hopkins that can help me. So, I've got some optimism on my side as I'm weaning off all my drugs to really see if the nerve blocks they're going to give me will help.
What's difficult and beyond explainably frustrating is that MY choice in when to start my family has now been taken away from me. When this nerve problem will be healed -- I have no idea. But as a doctor bluntly put it to me last week "you're not having a baby next year - get it out of your head." The year after that? I don't know. All I can do is hope and focus on getting better.  |
Write a comment:
|
