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Posted Jun 14 2012 11:10pm
It's been awhile. Since I last posted, not much has happened. Summer classes started. My mom put a new hard drive in my computer. I've been seeing some great results with the Interstim. Even weight loss was going okay because my bladder was barely hurting.

Then Memorial Day happened. For some reason, the neuropathic pain came back.

Rewind a few years.

When I first became sick (with what we eventually found out was Dysautonomia), one of the first symptoms was intense, burning pain in my legs. I just remember crying a lot and not being able to walk. After we got everything under control, it mostly went away. All that was left was pain in one of my fingers, and it was only triggered by extreme cold. The Dysautonomia specialist in Birmingham waved it off as basic neuropathic pain. Who knows - maybe that's what it was, maybe it wasn't. It's probably also what caused such painful symptoms in my bladder.

Fast forward to Memorial Day. The intense pain in my legs came back, worse than ever. I can't figure out anything that might be triggering it. And sometimes it's in my hands, too. I've tried everything I can think of to make them feel better. Some days are worse than others. I can't believe I'm  back to this after all this time. I'm waiting on appointment with TN Valley Pain Consultants to help me figure it out. Here are the things I've tried1. B12 injections (I get those monthly anyway)
2. These leg cramp pills with quinine in them
3. Heating pads
4. Ice packs
5. Stretching/exercising them when they're hurting (awful idea)
6. Neurogen gel
7. Extra potassium
8. Extra multivitamin
9. Over the counter painkillers like Tylenol and Motrin
10. Doubling my Neurontin

Nothing worked.

But I realized lately that it wasn't completely out of the blue. Neuropathy isn't all about pain. It can include tingling and numbness.  Those areas that are hurting now, for the past few years, have had random hours of numbness as  well as random hours of tingling. So maybe it was there all along. I don't know why the pain has just now started, though.

The pain is worse than I remember. It could just be because I haven't had it back for very long, so I just have to semi get used to it again. Sometimes I can't walk. I can't sleep. It hurts worse than any of the surgeries that I've had. Getting a pocket of tissue in my back cut open twice in one week and wires strung through my spine were NOTHING compared to this.

Today has been a better day than most. I was even able to drive to get groceries. The pain was still there, just not as intense. Hopefully this is just a phase, and it'll go away soon. Things were going great - I was able to sleep at night, exercise, and do basic things because of the Interstim.

But it's not all bad, I suppose. At least I had one good month. That's more than a lot of people with illnesses can say. I'm also thankful that it happened during summer semester when I only have one class and a lab, instead of during a normal, hectic semester. And hopefully once this is dealt with, I'll have many more good months. :)

It was gone for so long, I'm fully confident that it can go away again. I just wish that it would hurry up.

So if I flake on you or tell you I can't hang out...there's my excuse. I probably won't be around much. If I was lying, it would be a much cooler excuse than that. <3
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