Health knowledge made personal
 You have electrodes all over your upper abdomen. I only have 5 as opposed to 7. So itchy!  - Edit - So it's been over 24 hours and we packaged up the holter monitor and sent it back like we were told to do. I'm not sure when we'll hear back from the doctor. My mommy came over last night to spend time with me. :) And today my dad and Trey came over to help move my futon into the bedroom and my bed into the living room. (I have an idiotic upstairs neighbor and have been sleeping on the living room futon...might as well be comfortable if I have to sleep in the living room. So...now there's a bed beside my front door.) I had a rough night with barely any sleep. I start taking Florinef again today. I'm not looking forward to that. But I'll do whatever it take to raise my blood pressure up. I forgot what it was earlier today, but I know it was way too low. But my Vandy appointment is on Wednesday, so I'm looking forward to that. :) |
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I've been going to the MVP Center in Birmingham since 2008 when we first figured out why I was sick. I had an appointment yesterday (Friday) to try to figure out why I'm backsliding and regressing so much.
Overview
1. I've been off Florinef for about a year. I was really proud of and happy about that. But now I have to go back on it.
2. I'd also been off sleep medicines. Those are also starting up again because my heart won't slow down enough for me to sleep.
3. I have to go back to my Rheumatologist. I had gone to him in the beginning for the nueropathic pain and again for when I had Hip Bursitis and Tendonitis after I'd basically been bed ridden but started to be semi-active again. The Tendonitis still exists, but he drained the bursae or whatever it is you do to it so the Bursitis is long gone. Anyway, I have to go see him because of the nueropathic pain. Honestly? I don't think he'll be able to help much.
4. She thinks the intense bladder pain is partially what's causing this symptom regression. So she said just hold on until the Vanderbilt appointment next week and then see where we are.
5. I had stopped checking my blood pressure at home because I was doing so well. But now I have to start checking multiple times daily again. Since my old pressure cuff got lost or whatever because the last time I used it was over a year ago, I'm having to use a new one.
6. She put me on a holter monitor for 24 hours. I can't sleep and it's 4:30 AM, so I took some pictures to help people understand what it is. It's a portable heart monitor that you carry everywhere. It records what your heart does so they can listen to it as well as get a print out of heart activity. Not very exciting. But it'll be nice to see what she finds. I don't really know what she's expecting. She already knows I have tachycardia and PACs.
The inside
The outside