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A Spoonie’s Guide to Disney

Posted Mar 21 2011 6:00am

One of my best gals headed down to Disney with her awesome family for the week and as a fellow spoonie, I had her take notes on how to survive the wonder that is Disney! As you know we are planning a trip ourselves in September so it is great to have some tips while we are planning! Mamie is no stranger to A New Kind of Normal and definitely check out her blog for more pictures!

I just got home from a great week in Orlando, FL at Walt Disney World. I was a little nervous about my first trip as a spoonie. I have Crohn’s disease, rheumatoid arthritis, fibromyalgia, and SVT (rapid heartbeat). The last time I went it was before any of my diagnoses and kids and I was a few years younger. I was worried that I wouldn’t be able to keep up this time. So for any of you out there that are worried like I was, I’m here to let you know that we can conquer Disney.

1.  Rest – It seems simple but it’s hard to remind yourself. I wanted to go all day but my husband made us take a break each day around lunchtime. We went back to the hotel, napped or swam and relaxed. Most families take their breaks around 3 or 4. Instead we took ours at 12 then by the late afternoon we were recharged just when everyone else was winding down.

2. Snacks - I packed snacks every day, everywhere we went. That way if I need to take medicine or just needed some nourishment I had them with me instead of searching for something and paying the inflated prices. I also packed healthy snacks which helped my stomach. It’s hard to find healthy food in the park. They do offer many gluten free options.

3. Heat – For me heat relaxes me and helps my tired muscles recharge. Each night, and some afternoons I took a warm bath or sat in the heating tub. It helped relax my overworked muscles and be ready for the next day.

4. Have Fun! – Disney World is so magical and so much fun. My rheumatologist gave me the best advice. He said, “Don’t think about going as a girl with a disease. Just go and have a good time with your family.” I did.

Mamie & Katie at Disney

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