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Chronic Fatigue Syndrome Community - Articles

August Deadlines and Opportunities for Advocacy by Erica Verrillo Reprinted with the kind permission of Jennie Spotila and  Occupy CFS . By Jennie Spotila There are a number of opportunities for ME/CFS advocacy right now – all ... Read on »
New Essay on Chronic Illness Published by Sue J. Patient ExpertHealth Maven Sorry I have been absent from the blog for a while. My dad just passed away this week, and we spent a week by his side in hospice in my hometown (Rochester, NY). I won't b ... Read on »
Weekly Inspiration 7/5: Living Beyond Limits by Sue J. Patient ExpertHealth Maven Amy Purdy, who lost both her legs and her kidneys and spleen to meningitis at 19, starts out this inspiring TED talk with this thought-provoking question "If ... Read on »
Update & Stress by Sue J. Patient ExpertHealth Maven I just realized I haven't posted anything here in a week and a half, so I thought it was time for a quick update. I've mentioned before that my dad has been battling stag ... Read on »
Study Finds SEID Case Definition Captures Patients With Depression, MS, Lupus by Erica Verrillo Leonard Jason has done it again. He has applied the scientific method and come up with something that makes sense. The IOM has, according to Jason, devised an unwor ... Read on »
Finding Presence Despite Absence by Laurel B. I recently listened to the audio version of Elisabeth Tova Bailey's The Sound of a Wild Snail Eating -- a beautiful, poignant and reflective book about surviving a debilitat ... Read on »
 7 Things I have Learned From Having a Chronic Illness by Erica Verrillo I am breaking a self-imposed rule today by addressing ME/CFS in the first person. It is not a subject I like talking about, except in the abstract: What research is bei ... Read on »
Movie Monday 6/22 by Sue J. Patient ExpertHealth Maven We had a very quiet weekend here, just my husband and I most of the time. We enjoyed a movie Saturday night on DVD Arthur Newman is about one of the oddest road trips y ... Read on »
Dealing with Light Sensitivity by Viv Patient Expert Hi Everyone, Today I want to discuss how to deal with light sensitivity. Our home and work environment can mess with our sensitivities to light, sound, and touch. Flouresce ... Read on »
A Tribute to My Dad for Father's Day by Sue J. Patient ExpertHealth Maven One of my earliest memories is when, at four years old, I ran out to the breezeway and greeted the kind man my mother was dating with, “Are you going to be my Daddy?” I ... Read on »

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