Outstanding post that is filled with current and solid research and studies on ME/CFS and the newly discovered infectious third human retrovirus.
Ms. Pring has made many valid points about reporting and the use by many journalists and media outlets of just spitting out the Press Releases sent to them without any validation of the facts, analysis of the subject, or really any further work than just posting the Press Release and leaving it at that. This is NOT real journalism, it is a lazy, careless and dangerous form of journalism as the four faked studies in the online Retrovirology journal reveal. Those "studies" came out on the same day and were politically motivated to counter the very real, hard-core research of the positive studies on ME/CFS and the third human Retrovirus. Essentially, the "authors" of the study knew they did not have to do real research, no one would fact check, so they ginned up enough for a Press Release and then sent that Press Release out into the world so it could do its work - using fake research to damage the validity of very real research. The media picked up the PR and just threw it out there for the newspapers and Internet to pick up. This was NOT science but public releations and shear politics from the UK Wessely group.
The UK's Simon Wessely and the US CDC/CFS (William Reeves) were in cahoots together to ensure that ME/CFS sick were made to look lazy, crazy and even published a document on the very sick as having a "personality disorder" instead of very real medically validated issues. The CDC Personaltiy Disorder paper was William Reeves last shot at attacking and demeaning the ME/CFS sick who he had damaged with CDC's assistance for nearly 30 years. Almost every mental illness term was thrown into that document. The Personality Disorder document was dismissed right off the bat by those in medicine and in the research fields for what it was: a last attack by a humiliated sociopath at very sick people.
The UKs Simon Wessely worked closely with William Reeves to ensure that the ME/CFS sick would remain in the eyes of the public as lazy and crazy and it did work quite well until 5,000 plus studies on ME/CFS from all fields were out in the pubic domain and then the final coup, the Whittemore-Peterson Institute's association between ME/CFS and a probably highly infectious and most likely deadly Retrovirus family. The WPI's study was further validated by the US FDA, NIH, NCI, Cleveland Clinic and Harvard. Pretty hard to refute studies by other more serious US Federal health organizations and that's when the CDC/CFS program and William Reeves took their fall. Reeves was removed from his post at the CDC/CFS and the CDC has been in hiding since then as they are well aware that the rest of the real researchers, physicians, policy makers, and public worldwide now know that there is indeed a deadly Retrovirus out there that is contagious and has been in the nation's blood supply for at least 30 years. And the CDC knew it and allowed this deadly third human Retrovirus to be out there without any research done on it.
Why did the CDC allow a Retrovirus to go unstudied when they were well aware that there had been another Retrovirus study by Drs. Defreitas, Bell and Cheney back in the mid 1980's? In the late 1980's the CDC "replicated" the Defreitas Retrovirus study and intentionally damaged the research coming up with two opposing results. So although the patent for this Retrovirus was issued (and searchable), the CDC made it a point to damage that Retrovirus research and then kill off any further research until it was picked back up again by Prostate Cancer researchers and then the Whittemore-Peterson Institute - 29 years later.
Many believe that the insurance companies were very much involved in damning ME/CFS and ensuring that the sick did not get any disability compensation. AIDS was moving through at the same time (HIV is the second human retrovirus) and those sick were costing the insurance companies huge amounts of money. So with prodding by the insurance companies, the CDC "concluded" that ME/CFS was to be surpressed, no real research done on it, and the very sick demeaned so that no one would believe they were in fact terribly sick. And oh, yes the ME/CFS sick do die from their disease. The sick die around 25 years earier than a normal life span and from heart disease, the cancers (leukemia/lymphomas are big) and suicide (not from depression but from living in one's own personal hell and being damaged and demeaned by their own family, friends, doctors, and the public). Wessely and Reeves did a great job in keeping the insurance companies safe from having to pay out claims on ME/CFS for more than two decades. They also had joined forces to ensure that this disease was seen as psychiatric in both countries so that those costs for real research and treatment would not amount to much more than a few psychologist's office visits and dangerous "treatments" that do indeed further damage the sick.
The history of ME/CFS and the UKs Simon Wessely and the USs William Reeves and other CDC players is sordid. For a great account of the last three decades of the damage done to the very sick AND a deadly Retrovirus read Hillary Johnson's OSLER'S WEB. See her site at .
Since the 6 December 2010 Washington Post advertisement that alerted the policy makers, researchers, physicians and public to this newly discovered Retrovirus things have started to change slowly in the US for ME/CFS sick. The situation in the UK remains deadly with many ME/CFS sick dying in psych wards IF they do not "admit" they are mentally ill. It is worse than the old Soviet Union was in dealing with their sick.
Those four fake studies and their powerful press release were very dangerous to the world's population. The studies were faked and no one bothered to look into them to see if the methods used were real. The media just pushed out the Press Release and let it do its damage. This type of lazy journalism can not be allowed to happen again, especially to research that is critical to every single person in the world. This Retrovirus may well be the cause of ME/CFS, other horrible diseases including prostate and breast cancer, autism, MS, and other neuro-immune-endocrine diseases. The Retrovirus may also be key to understanding how many cancers are able to exist. The CDCs damage of the Retrovirus in the late 1980s probably sent cancer research back a good 30 years. The CDC's unethical behavior also probably prevented major inroads into the serious diseases with many millions of people suffering terribly and then dying - and they may not have had to. Autism is another disease that shot up hugely from the 1980s onwards. What role did the Retrovirus found by Defreitas/Bell/Cheney play in Autism? We don't know because the CDC did not want anyone to know.
Do not allow shoddy, lazy journalism to continue damaging real research. Many millions of people worldwide suffer and die because of this type of lazy journalism and hyped Press Releases that go without fact checking or any sort of validation.
Big changes in lazy journalism need to be made. Big changes in the way that the world's governements have allowed outside influence like the insurance companies and big Pharma to play into real research must also take place.
Finally, it is time for Simon Wessely and company from the UK and the CDC/CFS William Reeves followers to step OUT of ME/CFS programs and let the real researchers do their jobs. No more psychobabble that has kept millions worldwide badly disabled and in bed. No more psychobabble that has brought the lifespan of the ME/CFS sick to average age of 54 due to heart disease, cancers and suicides. All of this must change now.
Thank you Ms. Pring for a very valuable and insighful article. Your points are on target and the links provided are extremely important for the public to go and read what has gone on and what is currently going on in this "underworld" by a very small group of people in the US and UK.
Sincerely - Sarah McGroarty