The Massachusetts CFIDS/ME and FM Association recently conducted a survey of patients about their relationships with well family and friends (and the outside world in general), asking "What do you want well people to know?" The results are interesting; many of the comments really resonated with me.
ProHealth published this article on What CFS Patients Want Healthy People To Know , based on the survey results. The article is a bit long and somewhat repetitive, but overall a great summary of our typical interactions with the outside world. I shared the article on Facebook with my family and close friends - I think it is easier for them to hear some of this from a generic source like this survey rather than from their sick loved one directly.