Last week (was it only just last week?), I attended the Fall 2012 CFS Advisory Committee Meeting at the Department of Health and Human Services. I was only able to be there for a few hours, and I gave my testimony during the public comment period. The HHS has posted video clips of each section of the meeting on Youtube, so I thought I'd share the links here for everyone who wasn't able to attend the meeting.
I think I will post the clips from Day 1 here and the clips from Day 2 in another post, so it's not too long.
Welcome and opening remarks
Presentation: Biomarkers: An Overview and Future Look
Public Comment Period #1 (am): My testimony is at 11 min, 15 sec, Denise Lopez-Majano, founder of Speak Up About ME, gave her son's testimony starting at 44:35, and the last speaker is Laura Hillenbrand's father.
Agency Updates from HRSA, NIH, and FDA
FDA and Drug Development
Public Comment #2 (pm): Faith Newton gives her testimony at 30 minutes; Faith is a good friend of ours - her teen son has CFS and goes to the same high school as my sons and she is an educational expert.