I am not as good as I was last week. I have been very tired over the last few days and I have a very sore throat and more chills than usual. I think this is the ENT infection I've had for the last couple of months lingering. It appears to be manifesting a bit differently each time. I still have swollen glands behind my ears. They've been there for about three months now. This is why I believe that same infection has been lurking around. I think I probably did too much last week which I'm sure has contributed to this. I really want to try and get out of the "push crash cycle", if that is even correct? Am I sometimes getting sick from doing too much or is it unpreventable infections coming and going? Actually, I think it's a mixture of both and I don't know if either can be controlled any further than what I'm doing. However, I will look into this further soon. First I have things to do.... He heee : )
I was at a talk by a woman from the US called Dr. Gina Honeyman, who is a chiropractor and a respiratory therapist last Saturday. She does some work with ME/CFS and Fibromyalgia patients. As I wasn't feeling great and my concentration is so bad at the moment I didn't remember everything she talked about. I wrote down some points. I also found the presentation very fragmented. She says she has a large success rate in helping people significantly improve.
The young Irish woman who arranged the talk has ME/CFS. She had a slow onset and was a student when she became ill. She spent some of that time bed ridden. She put on four stone, her hair fell out, was in a lot of pain and lots of the usual symptoms. She had been to many other doctors specialists who were of little help. She is a chiropractor herself and I think this is how she came into contact with Dr. Honeyman. To cut a long story short Dr. Honeyman has helped turn her life around and she is significantly improved now.
I can only talk about my take on the whole talk and it may differ to others. Dr. Honeyman is largely concerned with inadequate thyroid regulation. She says that the standard thyroid test doesn't tell us if there is a thyroid problem and that we need to do a range of tests. Many doctors will move on if a thyroid test comes back normal, even if the patient is presenting with symptoms of an inadequate thyroid, for example weight gain. Also a lot of doctors won't even do the test if the patient is slim. Slim people can have inadequate thyroid regulation too.
Dr. Honeyman said that the TSH test is worthless if the information is not used appropriately. If it is used appropriately then it is a good test. She said we need to test how we use the thyroid hormone at the tissue level. She went on to say the problem may lie with the thyroid receptors and where the antibodies are being formed. She said test usually show that thyroid hormone resistance is normal. But the patient is showing symptoms that say otherwise. She said it is very important to measure the metabolic rate ( a test that has been around for years). This is controlled by the thyroid hormone. She measures lean muscle mass, questioning "can it support" their metabolism?"
The tests that she said are important are:
Thyroid peroxidose antibodies (very important test)
Thyroglobulin antibodies (very important test)
Dr. Honeyman said that once and if you find out you have a thyroid problem, that there are over the counter products that can be purchased and that are very helpful. I didn't get the names. She said that they are only to be used if a thyroid problem has been found.
She also talked about adrenal issues. The main point she stressed about this in relation to cortisol levels was that the only accurate and good test for measuring these was the 24hr saliva test. I was surprised that a lot of people said they're doctors don't even do or know of such tests, something which she confirmed. My doctor, Dr. Magovern had done all of this with me. We send the tests to the UK. So basically, I personally didn't learn a whole lot that I didn't already know. Although I feel there were a lot there who did really benefit from it. I felt that Dr. Honeyman was just another professional who felt very passionately about HER hypothesis, something I took with a pinch of salt. She failed to talk about infections and their part in these illnesses. I do believe the endocrine system is a big part of the puzzle, but a PART of the puzzle at that.
I must say a big THANK YOU to Louise Marry, the young women who organised the talk. I think it helped a lot of people. I will be investigating and doing further research on the whole issue of thyroid hormone and its role in the body myself.
One very simple and useful piece of advice that Dr. Honeyman gave: was to go out and buy a good human physiological book and learn how the body works and how all the systems are linked.