I was recently told by one of my CFS/lyme friends that she stopped following my blog because there was just too much of that going on, and too little of "what exactly are you doing" and "how much better are you getting." Of course at the time I was a bit offended. When I first set out to blog about my journey, I didn't want this to be just about my treatment. I wanted to paint a broader picture of our illness and try to bridge the gap between the consciousness of CFS patients and the much different consciousness of non-patients. I was motivated by the fact that you couldn't seem to be entirely honest about this disease without polarizing yourself in sound and alienating others in effect. I wanted to try and do something about that, and I think to some degree I've been successful and to a much larger degree I've failed miserably. I don't blame that on my writing ability, tone, or style. The reality of CFS consciousness is that it's simply too different and to care enough to understand all the different layers we deal with, you need to at least be a patient. Therefore I think it's time to stop buying into the illusion that more than a handful of family/friends read this blog.
Of course most patients like the aforementioned friend just want to hear about what works and what doesn't. Most patients have so little mental reserves that they either can't read large quantities of text or, if they can, they cannot process it. I thought writing about changes upstairs that were beyond my physical body but that ultimately (I'm convinced) affected my physical wellness was important, but it turns out only a thin minority of patients feel that mind-body wellness is a worthwhile investment of limited financial, physical, and mental resources.
So _____, I agree with you. For the sake of the patients that I've always wanted to encourage, help, or inspire with my experience, I'm making this a treatment blog from now on.
"And the moment has passed."
Recently, I've actually been hitting several tips of icebergs with regard to treatment. In my last two entries, I talked about Patient X, who's real name is Michael Dessin. What he and his doc have been preaching about is the restoration of the autonomic nervous system. That's what made me open up the amygdala retraining program and also go to great lengths to find a neural therapy practitioner. For those that don't know, the goal of neural therapy goes beyond clearing interference fields due to scars, which then allows accumulation of toxins/infections/metals in the areas of those scars to start flowing again: by hitting certain areas of the brain or hitting meridians related to the amygdala/limbic system or even by a feedback loop from scars, injuries, organs that received these procaine injections, this therapy can rapidly improve normal-state function of the ANS.
I got a heart rate variability (HRV) test done twice recently (this is the test Dr. Klinghardt uses to measure ANS function) and both my SNS and PNS are out of whack. That just confirms that this is an area that needs to be looked at.
So last week I met with this CFS specialist in Tustin, CA that does neural therapy. You can understand my shock to find that this MD takes insurance and actually operates on the same wavelength as I. Throughout my talk with him, I had several "where have you been all these years" moments, but everything happens for a reason at the time it happens. I lived about 5 minutes from his office 2 summers ago, but I forewent seeing him because he required all your medical records before maybe calling you if he wanted to see you. If that isn't CFS elitism I don't know what is.
Anyway, during our session, we talked about micro-dose bio-modulation (aka biopuncture), which sounds very close to what Michael's doctor does. It is a combination of neural therapy with homeopathics. When I told him about my experiments with the Bionic 880, his eyes literally lit up and he started glowing about photon-directed action (PDA), which is essentially photons of various wavelengths combined with homeopathics based on asyra screening. To me, it sounds like this is the next step up from Lee Cowden's wildly unsuccessful LED detox. I'm wondering if this is actually from his own research. This has the advantage over my Bionic because it has various wavelengths instead of just 880nm, and he can determine at time of testing what exactly needs to be worked on. This is difficult for me to do at home, where I energetically test one vial at a time.
So I'm really excited about the possibilities going forward.
I've been continuing with ozone, which has helped a lot with my energy levels. However, I must warn patients out there: ear insufflation needs to be done with caution. I have been able to detox my back brain (where toxins were energetically found) by using the bionic on the side of my pinky finger nails (acupuncture point), and only then was I able to use the ear insufflation safely. It was causing major brain fog before. However, rectal ozone and sauna ozone have tested well, in that order. I actually feel confident using the rectal 3x/week, sometimes more, without side effects.
Recently I've been experimenting with my friend in Switzerland with the possibility of using photons to do neural therapy. Photon the scar, then tap all 9 MFT tapping points (the 9 points that Dr. Klinghardt uses as a consolidation of all the acupuncture points in the body). This has worked much better than expected so far, so for those that have photon machines or are interested in getting it, the possibilities with photons really seem endless, theoretically and now in practice.
If I can treat all my scars/interference fields with photons, I may not need the traditional neural therapy and can skip to more advanced biopuncture or just NT for the brain (where I'm very cautious with photons.)
As for how I'm feeling, I'm still on the up and up. Just this weekend, I went sea kayaking for about an hour with my sister, and then Sunday I went biking around a huge lake near my house. I still have a few hours of postexertional malaise and rough sleep afterwards, but it's much better than suffering for 1-2 days afterward like I used to. The ozone really helps with the recovery from lactic acid buildup.
Perhaps the biggest change is that I have more consistency from day to day. I can do some form of aerobic activity just about every day, or at the least every other day, and know that I won't feel ill the next day. I know that sounds like a staggering change from the perspective of a CFS patient, and it really is. Getting my mind used to that consistency and reducing the symptom anxiety ("if I do this now, how will I feel tomorrow?") has been just as challenging, and that's where the amygdala retraining program has been incredibly helpful. I encourage all the CFS micro-managers out there to invest in this program. There is rational pacing, and then there is rational pacing without triggering the amygdala. A subtle difference but one that is definitely worth exploring.
Seeing Dr. Peterson at Incline Village next week. For those that don't know, he's the famous doctor (along with Dr. Cheney) that treated the initial outbreak of CFS back in the 80's. From what I hear, he's prescribing Vistide (aka The Hammer), quite possibly the strongest antiviral ever invented, so I'm not sure I'll get much from him. But if anything, I'm calling upon my inner sleazy to network with him to get more info about the Whittemore-Peterson Institute.
Next month, I plan on seeing Harvey Bigelsen, the infamous (or famous, depending on how you look at him) ex-MD who does neural therapy with homeopathics, structural work, live blood analysis, isopathic remedies (i.e. sanum), ozone & hyperbaric. Basically right on my wavelength, so I think it should be a worthwhile visit. If anything, I get to have a conversation with one of the true medical/sociological geniuses of our time.