Sound Familiar ?
Greg Crowhurst 8 March 2009
Permission to Repost
Its cause remains unknown. There is no known cure. It develops differently
in each person and women are more likely to develop the disease than men.
Diagnosis is dependent upon the elimination of other physical causes.
The only way to be sure a person has the disease is to examine their brain
after death.
Patients cannot fully recover from the disease . They can be helped,
especially if the disease is discovered early enough.
It is a disease that affects millions around the world and there are huge
issues with NICE.
Sound familiar ?
No, it is not ME, it is Alzheimers.
------
It is a chronic disease of the central nervous system. It leaves distinct
layers of scar tissue in the brain, yet it is a fairly unknown and complex disease.
There is no known direct cause of the disease.
Diagnosis takes months of testing and the ruling out of other physical
causes. There is no single direct test for this disease.
There is no cure either. Treatment plans are highly individualised for each
person.
There is no known way to prevent the onset of the disease.
It affects millions around the world.
Sound familiar ?
No it is not ME, it is Multiple Sclerosis.
------
In its severe state it is particularly frustrating to care for, partly
because it is heterogeneous . The genetic and environmental elements that may cause
the disease are still poorly understood.
No it is not ME, it is Asthma.
----
For many years doctors thought that Irritable Bowel Syndrome was a
psychiatric rather than a physical disorder. Just as they still do in ME.
As Stephen Ralph asks : how many times have we seen a psychiatrist or a
psychiatric study describe "CFS/ME" as a "poorly understood illness?" (2008
HYPERLINK
"
http://www.meaction uk.org.uk/ Why_the_CISSD_ Project_MUST_ Fail.html"
http://ww w.meaction-uk. org.uk/-Why_ the_CISSD_ -Project_ MUST_-Fail. html)
Yet ME is only one among countless poorly understood illness in the world .
Here's just a few at random (references available upon request) :
Breast Cancer is still poorly understood.
The mechanisms behind the "eczema itch" are complex and still poorly
understood.
Endometriosis is still poorly understood and its cause is still unknown.
Obesity's connection to Cardiovascular Disease is complex and still remains
poorly understood.
Osteoarthritis is still a poorly understood disease , that has little to
with wear and tear. There is still no cure.
Airport malaria is still a poorly understood disease.
Neurocysticercosis : cystic lesions on the brain , is a poorly understood
disease.
Why women develop heart disease is still poorly understood . It is still a
mystery, for example, why younger woman are still more likely to die from a
heart attack than older woman.
Chronic Prostatitis Syndrome is a common, but still poorly understood
condition.
Pulmonary-renal syndrome is still a poorly understood clinicopathologic
condition .
Severe Acute Respiratory Syndrome (SARS) , is still a poorly understood
disease, despite being classified by the WHO in 2003 as a global threat to health .
Insomnia is still poorly understood by the medical profession.
Crohn's Disease and Ulcerative Colitis: are still poorly understood .
Calciphylaxis, a complication of end -stage renal disease is still a poorly
understood clinical syndrome.
Kawasaki disease, which involves the skin, mouth and lymph nodes is a poorly
understood disease, despite being studied since World War 11.
What is so tragic is that NONE of the poorly understood diseases listed
above cite psychiatric rehabilitation techniques as their first-line treatment
interventions, as they do in ME.
People above are suffering, often terribly, but at least they taken
relatively seriously; what we have to deal with is off the scale, and all because "in
the 1970s certain psychiatrists became involved (with ME,) notably McEvedy and
Beard, who in a paper with no scientific merit whatever, dismissed ME as
mass hysteria (see: BMJ 1970:1:7-11) -. "Marshall E, Williams M VadeMEcum
HYPERLINK
"
http://www.meaction uk.org.uk/ Vade_MEcum. htm"
http://www.meaction -uk.org.uk/ - Vade_MEcum.- htm
Will we ever know just how many deaths, how many endless hours of ongoing
suffering, how many broken hopes and dreams that has led to ?
Me, I'm just screaming.
Greg Crowhurst 8 March 2009
Permission to Repost
Its cause remains unknown. There is no known cure. It develops differently
in each person and women are more likely to develop the disease than men.
Diagnosis is dependent upon the elimination of other physical causes.
The only way to be sure a person has the disease is to examine their brain
after death.
Patients cannot fully recover from the disease . They can be helped,
especially if the disease is discovered early enough.
It is a disease that affects millions around the world and there are huge
issues with NICE.
Sound familiar ?
No, it is not ME, it is Alzheimers.
------
It is a chronic disease of the central nervous system. It leaves distinct
layers of scar tissue in the brain, yet it is a fairly unknown and complex disease.
There is no known direct cause of the disease.
Diagnosis takes months of testing and the ruling out of other physical
causes. There is no single direct test for this disease.
There is no cure either. Treatment plans are highly individualised for each
person.
There is no known way to prevent the onset of the disease.
It affects millions around the world.
Sound familiar ?
No it is not ME, it is Multiple Sclerosis.
------
In its severe state it is particularly frustrating to care for, partly
because it is heterogeneous . The genetic and environmental elements that may cause
the disease are still poorly understood.
No it is not ME, it is Asthma.
----
For many years doctors thought that Irritable Bowel Syndrome was a
psychiatric rather than a physical disorder. Just as they still do in ME.
As Stephen Ralph asks : how many times have we seen a psychiatrist or a
psychiatric study describe "CFS/ME" as a "poorly understood illness?" (2008
HYPERLINK
" http://www.meaction uk.org.uk/ Why_the_CISSD_ Project_MUST_ Fail.html" http://ww
w.meaction-uk. org.uk/-Why_ the_CISSD_ -Project_ MUST_-Fail. html)
Yet ME is only one among countless poorly understood illness in the world .
Here's just a few at random (references available upon request) :
Breast Cancer is still poorly understood.
The mechanisms behind the "eczema itch" are complex and still poorly
understood.
Endometriosis is still poorly understood and its cause is still unknown.
Obesity's connection to Cardiovascular Disease is complex and still remains
poorly understood.
Osteoarthritis is still a poorly understood disease , that has little to
with wear and tear. There is still no cure.
Airport malaria is still a poorly understood disease.
Neurocysticercosis : cystic lesions on the brain , is a poorly understood
disease.
Why women develop heart disease is still poorly understood . It is still a
mystery, for example, why younger woman are still more likely to die from a
heart attack than older woman.
Chronic Prostatitis Syndrome is a common, but still poorly understood
condition.
Pulmonary-renal syndrome is still a poorly understood clinicopathologic
condition .
Severe Acute Respiratory Syndrome (SARS) , is still a poorly understood
disease, despite being classified by the WHO in 2003 as a global threat to health .
Insomnia is still poorly understood by the medical profession.
Crohn's Disease and Ulcerative Colitis: are still poorly understood .
Calciphylaxis, a complication of end -stage renal disease is still a poorly
understood clinical syndrome.
Kawasaki disease, which involves the skin, mouth and lymph nodes is a poorly
understood disease, despite being studied since World War 11.
What is so tragic is that NONE of the poorly understood diseases listed
above cite psychiatric rehabilitation techniques as their first-line treatment
interventions, as they do in ME.
People above are suffering, often terribly, but at least they taken
relatively seriously; what we have to deal with is off the scale, and all because "in
the 1970s certain psychiatrists became involved (with ME,) notably McEvedy and
Beard, who in a paper with no scientific merit whatever, dismissed ME as
mass hysteria (see: BMJ 1970:1:7-11) -. "Marshall E, Williams M VadeMEcum
HYPERLINK
" http://www.meaction uk.org.uk/ Vade_MEcum. htm" http://www.meaction -uk.org.uk/ -
Vade_MEcum.- htm
Will we ever know just how many deaths, how many endless hours of ongoing
suffering, how many broken hopes and dreams that has led to ?
Me, I'm just screaming.